Arizona

• Email our Arizona Genetic Navigator Noan at arizonagenetic@gmail.com
• Learn about Noan

• Find a Genetics Clinic in Arizona
• Find a Genetic Counselor in Arizona

Family & Parent Support

Raising Special Kids – Arizona’s Family to Family Health Information Center

• Contact this group if/when:
  • you want to talk with another parent/family member of a child with the same or similar special health care need,
  • you need family support,
  • you are having difficulty navigating the system,
  • you just moved to the state with your child with special needs
• Programs and Services for Families
  • Raising Special Kids provides programs and services at no cost to families. No eligibility determinations are required. Any parent or family member of a child who has a special health care need can take advantage of services provided in English, Spanish, and other languages.

Newborn Screening Support

Arizona State Newborn Screening Program

• Office of Newborn Screening Follow up team:
  • Phone: (602) 364-1409 or (800) 548-8381 (outside Phoenix metro)
  • Fax: (602) 364-1495
• Contact this group if/when:
  • you have questions about newborn screening, your doctor has told you your child has a positive newborn screen and you are having trouble seeing a specialist/following-up or if you need a copy of your NBS results.

Early Childhood Support

Arizona Early Intervention Program (AzEIP)

• Contact this group if/when: 
  • you need assistance completing a referral or finding out if your child/a child you are providing services to who is between birth to three years of age; and has a significant developmental delay or established medical condition; is eligible for IDEA Part C early intervention services.
• Call Toll free: 888-592-0140

Division of Developmental Disabilities (DDD)

• Contact this group if/when: 
  • you need assistance applying or finding out if you/your child who is diagnosed with one of the following developmental disabilities is eligible for supports and services
    • Autism;
    • Cerebral palsy;
    • Epilepsy;
    • Cognitive / Intellectual Disability; or
    • Are under the age of six and at risk of having a Developmental Disability.
  • Call Toll free: 844-770-9500

Health Care Support

Arizona Title V / Children and Youth with Special Healthcare Needs

• Contact this group if/when: 
  • you need help accessing programs for special needs kids in your state, navigating the systems of care, new to the state, and need resources.

Medical Insurance and Medicaid Support

Arizona Medicaid (AHCCCS)

• Contact this group if/when: 
  • you need help finding out if you qualify for a waiver, need medical insurance coverage for your child with special health care needs.

Medicaid / Waiver Program

Arizona Long Term Care System (ALTCS)

• Contact this group if/when: 
  • you need assistance applying or finding out if you/your child who is 65 years or older, blind, disabled, or has a developmental disability and who requires nursing facility level of care, whether in an institution or home or community-based setting, is eligible for long term care supports and services.
• Call Toll free: 888-621-6880
• Arizona Section 1115 Demonstration Waiver 

Education Support

Raising Special Kids – Arizona’s Family to Family Health Information Center

• Contact this group if/when:
  • you want to talk with another parent/family member of a child with the same or similar special health care need,
  • you need family support,
  • you are having difficulty navigating the system,
  • you just moved to the state with your child with special needs
• Programs and Services for Families
  • Raising Special Kids provides programs and services at no cost to families. No eligibility determinations are required. Any parent or family member of a child who has a special health care need can take advantage of services provided in English, Spanish, and other languages.

• Telegenetics, or genetics through telemedicine, allows you to access genetic services anywhere
• Designed and produced by team members in the Genetics community in Arizona, this brochure will help you prepare for your visit!
• English Telegenetics Brochure (for families)
• Spanish Telegenetics Brochure (for families)

• Where is Bear is a fun book to enjoy with your child while checking that they meet the milestones of a typical two-year-old.
• Download a PDF of “Where’s Bear” 
• A developmental delay or missing milestones can sometimes be a “red flag” for a genetic condition.
• View other developmental books and resources  for all ages from the CDC.
• If you have concerns about your child’s development, please talk to your child’s doctor. You can find more resources to help you do that, here. In addition, MSRGN has developed a Developmental Delay Algorithm that you can share with your child’s doctor.

• Fran (Co-Lead)
• Kathy (Co-Lead)
• Annie
• Janet
• Kelly
• Sonia
• Supraja
• Noan
• Danielle
• Dawn
• Alison
• Jerrilene