COVID-19 Resources for Families with Genetic Conditions in Arizona


Find a Genetics Clinic in Arizona


Arizona State Newborn Screening Program

Office of Newborn Screening Follow up team:

Phone: (602) 364-1409 or (800) 548-8381 (outside Phoenix metro)
Fax: (602) 364-1495

Contact this group if/when: you have questions about newborn screening, your doctor has told you your child has a positive newborn screen and you are having trouble seeing a specialist/following-up or if you need a copy of your NBS results.


Raising Special Kids – Arizona’s Family to Family Health Information Center

Contact this group if/when

  • you want to talk with another parent/family member of a child with the same or similar special health care need,
  • you need family support,
  • you are having difficulty navigating the system,
  • you just moved to the state with your child with special needs

Programs and services for families

Raising Special Kids provides programs and services at no cost to families. No eligibility determinations are required. Any parent or family member of a child who has a special health care need can take advantage of services provided in English, Spanish, and other languages.


Arizona Title V/Children and Youth with Special Healthcare Needs 

Contact this group if/when: you need help accessing programs for special needs kids in your state, navigating the systems of care, new to the state, and need resources.


Arizona Early Intervention Program (AzEIP)

Contact this group if/when: you need assistance completing a referral or finding out if your child/a child you are providing services to who is between birth to three years of age; and has a significant developmental delay or established medical condition; is eligible for IDEA Part C early intervention services.

Call Toll free: 888-592-0140


Division of Developmental Disabilities (DDD)

Contact this group if/when: you need assistance applying or finding out if you/your child who is diagnosed with one of the following developmental disabilities is eligible for supports and services.

  • Autism;
  • Cerebral palsy;
  • Epilepsy;
  • Cognitive / Intellectual Disability; or
  • Are under the age of six and at risk of having a Developmental Disability.

Call Toll free: 844-770-9500


Arizona Medicaid (AHCCCS)

Contact this group if/when: you need help finding out if you qualify for a waiver, need medical insurance coverage for your child with special health care needs.


Arizona Long Term Care System (ALTCS)

Contact this group if/when:  you need assistance applying or finding out if you/your child who is 65 years or older, blind, disabled, or has a developmental disability and who requires nursing facility level of care, whether in an institution or home or community-based setting, is eligible for long term care supports and services.

Call Toll free: 888-621-6880


Grant Year 4 Project – Telegenetics Brochure

Grant Year 4 Project – Telegenetics Brochure (Spanish)