Montana

• Email our Montana Genetic Navigator Jennifer at montanagenetic@gmail.com
• Learn more about Jennifer

• Shodair Medical Genetics
• Logan Health Genetics
• Billings Clinic
  • Genetic Counseling for Cancer Patients
  • Genetic Counseling for Pregnancy
• Benefis Health System

Family & Parent Support

Support & Training for Raising a Child with Special Health Care Needs

• Montana Family to Family Health Information Center
• Rural Institute Inclusive Communities
• Montana Empowerment Center

Newborn Screening Support

For General Information on Newborn Screening in Montana:

• Montana DPHHS – Children’s Special Health Services
• Montana DPHHS Newborn Screening Laboratory

Early Childhood Support

This group provides services and supports for families who have infants or toddlers (birth-3) who have significant developmental delays or disabilities or have been diagnosed with an established condition associated with significant delays in development.

Montana Milestones Part C Early Intervention Program

Montana Part C Early Intervention Agencies & Counties Served

Health Care Support

Care Coordination, Education, Intervention, and Transition Assistance

• Montana Medical Home Portal
• Montana Parent Partner Project
• Montana School for the Deaf & the Blind
• Children’s Special Health Services
• The Network for Public Health Law 

Medical Insurance, Medicaid and Waiver Support

Help to Get a Diagnosis, and to Get Insurance Coverage for a Diagnosis

• Montana Medicaid and Healthy Montana Kids (HMK) Plus
• Medicaid Waivers

Financial Assistance and Support

• Montana Genetic Testing Financial Assistance Information
• CSHS Financial Assistance

Other Resources

Moving to Montana Resource (a guide for families who may be moving into Montana)

COVID-19 Resources

• COVID-19 Resources for Families with Genetic Conditions in Montana
• COVID 19 Update from Shodair Genetics Clinic

• View the Algorithm (for Healthcare Professionals)
• Learn more about the Algorithm
• This algorithm provides guidance for primary care clinicians in determining the cause of developmental delay, including the initial genetic evaluation.

• View the Algorithm (for Healthcare Professionals)
• Learn more about the Algorithm
  • This algorithm serves as a practical guide to assist primary care providers in diagnosing Hypermobile Ehlers-Danlos syndrome with step-by-step recommendations for diagnosis, management, and referral.
• MSRGN Time 4 Genetics (January 6th, 2022) Webinar w/ Abdallah (Abe) Elias – What To Do When you Suspect Ehlers-Danlos Syndrome
  • Enduring continuing education credits (CEUs) available for physicians, nurses, pharmacists, and physician assistants

• In a survey conducted by MSRGN in early 2021, 89% of our 100+ families that later received a genetic diagnosis noticed “red flags” for genetics before the age of 4.
  • Learn more about the Red Flags for Genetics Handout
  • View the Red Flags Handout
  • Read the Red Flags for Genetics Launch Post (June 2021)
    

• In an effort to advance access to genetics for underserved populations in Montana, the Montana State Team chose to use their Grant Year 4 (June 2020 – May 2021) funding to purchase and donate two laptops and one iPad to MonTECH, Montana’s technology-lending library based out of the University of Montana.
• MonTECH ships this equipment to and from families so they can access telehealth services

• Catherine (Co-Lead)
• Jaclyn (Co-Lead)
• Caitlyn
• Corbin
• Doris
• Amber
• Katherine
• Jenn