COVID-19 Resources for Families with Genetic Conditions in Montana

COVID 19 Update from Shodair Genetics Clinic: here

Find a Genetics Clinic in Montana


Montana Department of Public Health & Human Services:


Children with Special Health Care Needs

Children’s Special Health Services works to help children and families in Montana receive the healthcare and supportive services they need to live happy, healthy lives in their communities. We do this through programs that help educate families and providers, connect families to needed resources, and provide care for children and youth (0-21 years of age) throughout the state.

Newborn Screening

State NBS lab:

Newborn Screening Supervisor, email Angela Dusko, or call 406-444-3040; or Newborn Screening Follow-up Coordinator, email Crystal Fortune, or call 406-444-0930.


Family to Family Health Information Center -F2F

Montana Family to Family Health Information Center

The Rural Institute for Inclusive Communities

University of Montana

040 N. Corbin Hall

(406) 243-4570

Primary Contact(s):

Jennifer Banna 406-243-4570

Each F2F is staffed by highly-skilled, knowledgeable family members who have first-hand experience and understanding of the challenges faced by families of CYSHCN. These uniquely qualified staff provide critical support to families caring for CYSHCN, particularly families of children with complex needs and those from diverse communities.

F2Fs also assist providers, state and federal agencies, legislators, and other stakeholders to better understand and serve CYSHCN and their families.


Title V

Ann Buss, MPH
Maternal Child Health Coordination Section Supervisor
Family and Community Health Bureau
Phone: (406) 444-4119

The Maternal and Child Health Services Block Grant, Title V of the Social Security Act, is the only federal program devoted to improving the health of all women, children and families. Title V provides funding to state maternal and child health (MCH) programs, which serve 35 million women and children in the U.S. To learn more about Title V, visit The Official Website of the U.S. Social Security Administration or The Association of Maternal & Child Health Programs.



Montana Medicaid and Healthy Montana Kids (HMK) Plus

Montana Medicaid and HMK Plus are healthcare benefits for eligible low-income Montanans. Montana Medicaid and HMK Plus pays for services that are:

  1. Medically necessary,
  2. Provided by a Montana Medicaid/HMK Plus enrolled provider, and
  3. Medicaid/HMK Pluscovered services.

Public Assistance Help Line
Eligibility and reporting changes to your case

Medicaid/HMK Plus, Member Help Line
Medical Benefits, copayments, and Passport to Health questions


Medicaid Waivers 

call to get on the waiting list if you don’t have a waiver or to see what waiver you might qualify for

111 Sanders, Room 305
Helena, Montana 59604
406-444-2995 – fax (406) 444-0230

Novelene Martin, Bureau Chief


Montana Medical Home Portal

EPSTD (info)


Montana Genetic Financial Assistance Form

Montana Department of Public Health and Human Services (DPHHS) – Children’s Special Health Services (CSHS)


Genetics Referral Form

Shodair Children’s Hospital


Release of Information Form

Shodair Children’s Hospital