Welcome to the Nevada MSRGN team. 

You may be here because you have questions about a loved one and genetics. We are here to help you navigate those questions.

Please click on the boxes below for resources or contact us if you have more questions and would like to connect.

Contact the Nevada Genetic Navigator
Do you need help navigating genetics in Nevada?
Find a Genetics Clinic in Nevada
Try our map and search tool - get started
Family Support and Resources in Nevada
Click here to see more Nevada Resources

Family & Parent Support

Family Navigation Network (Nevada Center for Excellence in Disabilities)

  • Contact this group if/when:
    • you need health care support and community resources for children and youth with special health care needs, their families, and professionals who serve them
  • Contact Information:
    • Address: University of Nevada, Reno, Nevada Center for Excellence in Disabilities (NCED):
    • Phone: 833-427-1673
    • Se Habla Español
    • Email: NCEDFamily2Family@unr.edu

Little Miss Hannah

  • Contact this group if/when:
    • you would like help enhancing the quality of life for young children diagnosed with rare, life-limiting, or undiagnosed complex medical needs, as well as children who have been placed in hospice or palliative care
  • Tools, financial assistance, and support resources available

Nevada Governor’s Council on Developmental Disabilities (NGCDD)

  • Contact this group to:
    • Engage in advocacy, system’s change and capacity building activities for people with developmental disabilities and their families in order to promote equal opportunity, self-determination, and community inclusion.

Nevada Rare Disease Advisory Council – Nevada Department of Health

  • Contact this group to:
    • Review what the Nevada Department of Health is discussing and researching regarding rare diseases in Nevada
Medical Insurance, Medicaid, & Waiver Support in Nevada
Click here to learn what is covered and not covered in Nevada

Finding Insurance in Nevada

Nevada Medicaid

Nevada Medicare

  • Contact this group if/when:
    • you or your child are 65 years or older and are now eligible for medical insurance through Medicare

Healthcare.gov

  • Contact this group to:
    • Access a market of health insurance providers and plan options available to you

TRICARE West

  • Contact this group if/when:
    • You are searching for more information on TRICARE in Nevada

Nevada Health Link

  • Contact this group for:
    • assistance finding the right Nevada health plan for you or a loved one
    • information on the benefits you are eligible for

Special Eligibilities & Waivers

Social Security Administration – Disability

  • Contact this group if/when:
    • you have been told to may be eligible for Supplemental Security Income, often available to those with disabilities
    • Social Security Disability Insurance pays benefits to you and certain members of your family if you are “insured,” meaning that you worked long enough and paid Social Security taxes
    • Supplemental Security Income pays benefits based on financial need

Katie Beckett Eligibility Option 

  • Contact this group to:
    • Access and apply for Supplemental Security Income (SSI) available to children with disabilities
Services in Nevada
Here are all of the services we think you might like to know about

Newborn Screening Support

Nevada Newborn Screening Program

  • Contact this group for:
    • Information on Nevada’s Nevada Newborn Screening Program based out of the Nevada State Public Health Laboratory

Early Childhood Support

Nevada Early Intervention Programs

  • Contact this group if/when:
    • you have concerns (or would like more information) about developmental milestones and delays for young children

Early Periodic Screening, Diagnostic, and Treatment (EPSDT)

  • Contact this group if/when:
    • you have any concerns about your children’s health, “HEALTHY KIDS” CAN HELP YOU – we all want Nevada’s children to grow up healthy.

Health Care Support

Nevada Medical Home Portal

  • Contact this group if/when:
    • you would like reliable information about children and youth with special health care needs (CYSHCN) in Nevada
    • a one-stop shop for:
      • Families
      • Physicians and Medical Home teams
      • Other Professionals and Caregivers

Contact these groups for health care information specific to your area of Nevada:

Contact these groups for health care information for specific diseases, disorders, conditions, or disabilities

National Organization for Rare Disease (NORD) 

  • Contact this group to:
    •  Connect with an organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Dreamsickle Kids Foundation

  • Contact this group if/when:
    • You would like resources specific to Nevada regarding Sickle Cell Disease (SCD) and other rare diseases
  • Dreamsickle aims to improve equity and access to care for the communities affected by such diseases

Education Support

Nevada PEP (Strengthening Families with Education, Empowerment, Encouragement)

  • Contact this group to:
    • access training and workshops to help children with special needs (birth to age 26)
    • connect with a network of families with special needs in Nevada
Developmental Delay Algorithm & Red Flags 4 Genetics
Concerned about developmental progress?

  • A developmental delay or missing milestones can sometimes be a “red flag” for a genetic condition.
  • If you have concerns about your child’s development, please talk to your child’s doctor. You can find more resources to help you do that, here.
Our Team
Interested in who the Nevada State Team is?