Nevada Newborn Screening Coordinator
Contact this group if/when: you need NBS results, your doctor has told you your child has a positive new born screen and you are having trouble seeing a specialist/follow-up
If you need NBS results, address, general info, order NBS kits (775) 682-6238 or 702-289-4578
If your doctor has told you your child is positive for a NBS and you are having trouble seeing a specialist/follow-up, doctors who want to discuss abnormal results, call follow-up at 702-289-4578 or the lab at (775)-682-6238
3710 Grant Drive, Suite B, Reno, NV 89509
Phone: (775) 823-9500 Fax: (775) 323-2205 Toll-Free: (866) 326-8437
The NVF2F will provide a place for families to access peer support to help navigate the disjointed system of care for children and youth with special health care needs in Nevada. Through family-centered, community-based and culturally competent care, services include training, information, support and advocacy – offered by workshops, conference calls, web-based training center, toll-free parent support information/referral line, newsletter, and on-line Resource Directory.
Contact this group if/when:you need family support, you are having difficulty navigating the system, you just moved to the state with you child with special needs
Northern Nevada (Washoe, Clark and Surrounding counties)
2667 Enterprise Rd.
Reno, NV 89512
Phone: (775) 688-1341
FAX: (775) 688-2984
Southern Nevada (Clark and surrounding counties)
1161 S. Valley View
Las Vegas, NV 89102
Referral: (702) 486-9200
Phone: (702) 486-7670
Fax: (702) 486-7686
Contact this group if/when: you are in need of Nutrition, Occupational therapy, Physical therapy, Speech therapy, Vision and hearing services for your child under 3 years old. Family training or counseling, and Parent support are also available for those who qualify.
UNLV School of Medicine Genetics
1524 Pinto Ln 2nd floor
Las Vegas, NV 90106
Contact this group if/when: you need help accessing programs for children and youth with special health care needs in Nevada
Contact this group if/when: you need help finding out if you qualify for a waiver, need medical insurance coverage for your child with special health care needs.
Nevada Medicaid Waivers
Katie Beckett (<19 years of age)
Contact this group if/when: you need help finding out if you or your child qualifies for a waiver.
What Medicaid Waivers (income independent) are available for Children with Genetic conditions (and other special healthcare needs) in your state?
How does a family apply for them?
- Families must first apply at the Division of Welfare and Supportive Services they individually work with the state welfare office
Additional Resources for Nevada:
The Little Miss Hannah Foundation’s mission is to help enhance the quality of life for young children diagnosed with rare, life-limiting, or undiagnosed complex medical needs, as well as children who have been placed in hospice or palliative care.
available 24/7-provide information & referrals to health, human and social service organizations.
text your zip code to 898211; chat with Nevada 2-1-1
provides resources and support to community agencies serving children from birth to age twenty one, identify conditions children are born with earlier; develop complete, culturally appropriate, and family-centered services including genetic services; and understand how genetics affects health.
unique source of reliable information about children and youth with special health care needs and offering “one-stop shop” for their families, physicians and medical home teams, and other professionals/caregivers
Zero to Three
ensure that babies and toddlers benefit from the early connections that are critical to their well-being and development.
Western Office phone-213-481-7279
Nevada Early Intervention Services (NEIS) Aging and Disability Services Division
programs for infants and toddlers with disabilities under the age of three who meet eligibility requirements.
Project Assist– 800-522-0066
Southern Nevada Referral Hotline-702-486-9200
Northern Nevada Referral Hotline-775-688-1341
Child Find: Three years of age and up needing an evaluation
Child Find- is an evaluative process to address the federal mandate to locate, evaluate, and identify children who may have a disability and are eligible for funded services as identified in the Individuals with Disabilities Education Act (IDEA). Child Find’s objective is to identify students, ages 3-21, who are not currently enrolled in public school and who may be eligible for special education services. These students include preschoolers, students attending private or parochial schools, or students receiving home-schooling.
-contact Child Find at:
Carson City County – (775) 283-2360
Churchill County – (775) 423-5187
Clark County – (702) 799-7463
Douglas County – (775) 265-5262
Elko County – (775)753-8646
Esmeralda County – (775) 572-3215
Eureka County – (775) 237-5700
Humboldt County – (775) 623-8128
Lander County – (775) 635-2349
Lincoln County- (775) 726-3772
Lyon County – (775) 463-6800 ext. 129
Mineral County – (775) 945-2403
Nye County – (775) 751-4015
Pershing County – (775) 273-5099
Storey County – (775) 847-0983
Washoe County – (775) 327-0685
White Pine County – (775) 289-4851 ext. 107
Nevada Home Visiting Resource link (statewide and by county)