Nevada

COVID-19 Resources for Families with Genetic Conditions in Nevada

Find A Genetics Clinic in Nevada

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Nevada State Newborn Screening Lab

Nevada Newborn Screening Coordinator

Contact this group if/when: you need NBS results, your doctor has told you your child has a positive new born screen and you are having trouble seeing a specialist/follow-up

If you need NBS results, address, general info, order NBS kits (775) 682-6238 or 702-289-4578

If your doctor has told you your child is positive for a NBS and you are having trouble seeing a specialist/follow-up, doctors who want to discuss abnormal results, call follow-up at 702-289-4578 or the lab at (775)-682-6238

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Nevada Early Intervention

Northern Nevada (Washoe, Clark and Surrounding counties)

2667 Enterprise Rd.
Reno, NV 89512
Referral: (775) 688-1341
Phone: (775) 688-1341
FAX: (775) 688-2984

Southern Nevada (Clark and surrounding counties)

1161 S. Valley View
Las Vegas, NV 89102
Referral: (702) 486-9200
Phone: (702) 486-7670
Fax: (702) 486-7686

Contact this group if/when: you are in need of Nutrition, Occupational therapy, Physical therapy, Speech therapy, Vision and hearing services for your child under 3 years old. Family training or counseling, and Parent support are also available for those who qualify.

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Nevada Title V Maternal and Child Health 

Children and Youth with Special Health Care Needs

Contact this group if/when: you need help accessing programs for children and youth with special health care needs in Nevada. CYSHCN provides resources and support to community agencies serving children from birth to age twenty one, identify conditions children are born with earlier; develop complete, culturally appropriate, and family-centered services including genetic services; and understand how genetics affects health.

Phone-775-684-3476

Nevada Home Visiting Resource link (statewide and by county)

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Nevada Medicaid 

Benefits information-

https://www.benefits.gov/benefits/benefit-details/1634

Contact this group if/when: you need help finding out if you qualify for a waiver, need medical insurance coverage for your child with special health care needs.

Nevada Medicaid Waivers 

Katie Beckett (<19 years of age)

Contact this group if/when: you need help finding out if you or your child qualifies for a waiver.

What Medicaid Waivers (income independent) are available for Children with Genetic conditions (and other special healthcare needs) in your state?

How does a family apply for them?

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Past Projects:

Nevada Brochure: Careers in Public Health Genetics

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Additional Resources for Nevada:

Family Navigation Network

The NCED Family Navigation Network supports families of children and youth with special health needs to navigate complex healthcare systems. They provide free one-to-one support, training, and printed materials to families and the professionals who serve them.

Little Miss Hannah Foundation 

The Little Miss Hannah Foundation’s mission is to help enhance the quality of life for young children diagnosed with rare, life-limiting, or undiagnosed complex medical needs, as well as children who have been placed in hospice or palliative care.

Nevada 2-1-1

available 24/7-provide information & referrals to health, human and social service organizations.
Call 2-1-1
or
1-866-535-5654
text your zip code to 898211; chat with Nevada 2-1-1

Nevada Medical Home Portal

unique source of reliable information about children and youth with special health care needs and offering “one-stop shop” for their families, physicians and medical home teams, and other professionals/caregivers

Zero to Three

ensure that babies and toddlers benefit from the early connections that are critical to their well-being and development.

Western Office phone-213-481-7279

Child Find: Three years of age and up needing an evaluation

Child Find- is an evaluative process to address the federal mandate to locate, evaluate, and identify children who may have a disability and are eligible for funded services as identified in the Individuals with Disabilities Education Act (IDEA). Child Find’s objective is to identify students, ages 3-21, who are not currently enrolled in public school and who may be eligible for special education services. These students include preschoolers, students attending private or parochial schools, or students receiving home-schooling.

-contact Child Find at:

Carson City County – (775) 283-2360

Churchill County – (775) 423-5187

Clark County – (702) 799-7463

Douglas County – (775) 265-5262

Elko County – (775)753-8646

Esmeralda County – (775) 572-3215

Eureka County – (775) 237-5700

Humboldt County – (775) 623-8128

Lander County – (775) 635-2349

Lincoln County- (775) 726-3772

Lyon County – (775) 463-6800 ext. 129

Mineral County – (775) 945-2403

Nye County – (775) 751-4015

Pershing County – (775) 273-5099

Storey County – (775) 847-0983

Washoe County – (775) 327-0685

White Pine County – (775) 289-4851 ext. 107