New Mexico

• New Mexico Disability Resource FINDER

Family & Parent Support

Parents Reaching Out (PRO) – Family to Family Healthcare Information Center

• Contact this group if/when:
  • you need parent/family support, in navigating Medicaid or other health care for your child with special health care needs, if you are having difficulty navigating other health care systems, or you just moved to the state with you child with special needs
  • This organization is under the New Mexico Family Health Information Center

Navajo Family Voices – Tribal Family to Family Health Information Center

• • Contact his group if/when:
    • you need help in the navigating the Indian Health Service or other health care services contracted with the Indian Health Service for your children with special health care needs.

Newborn Screening Support

New Mexico Newborn Screening

• Contact this group if/when:
  • your doctor has told you your child has a positive newborn screen and you are having trouble seeing a specialist/follow-up.
  • New Mexico Department Of Health
    • Phone: 877-890-4692
    • Address: 1190 S. St. Francis Dr. Santa Fe, NM, 87502
  • Brenda Romero, State Genetics Coordinator
    • Phone: 505-476-8857
    • Email: Brenda.Romero@state.nm.us
  • Carla Ortiz, NM Newborn Screening Nurse Consultant
    • Phone: 505-476-8858
    • Email: carlaa.ortiz@state.nm.us

Early Childhood Support

Early Childhood Education & Care Department – Family Infant Toddler Program (FIT Families)

• Contact this group if/when:
  • if you need help finding intervention services for a child with developmental delays / concerns.

Medicaid Support

Centennial Care

• Contact this group if/when: 
  • you are looking for information on Medicaid or need medical insurance for your child with special health care needs.
• This is an IDEA (Individuals with Disabilities Education Act) / Part B (Special Education Services for Children ages 3 to 21) program

 

Waiver Support

Developmental Disability / Medicaid Waiver

• Contact this group if/when: 
  • you need help finding out if you qualify for a waiver, need medical insurance coverage for your child with special health care needs.

Education Support

New Mexico Special Education

• Contact this group if/when: 
  • when you are looking for information on special education, IEP’s or special accommodations in your child’s school
• Contact:
  • Deborah Dominguez-Clark, Director of Special Education
  • Phone: 505-827-5800

Parents Reaching Out (PRO) – Parent Training Information Center

• Contact this group if/when:
  • if you are having questions about Individualized Education Plans (IEPs), 504s, or accommodations for your child’s school
  • This organization is the Parent Training Information Center for the state of New Mexico

• Learn more about our EDS Algorithm
  • This algorithm serves as a practical guide to assist primary care providers in diagnosing Hypermobile Ehlers-Danlos syndrome with step-by-step recommendations for diagnosis, management, and referral.
• View the EDS Algorithm (for Healthcare Professionals)
• Diagnostic Criteria / Checklist (for Healthcare Professionals)
  • Electronic Checklist
  • Print Checklist
• MSRGN Time 4 Genetics (January 6th, 2022) Webinar w/ Abdallah (Abe) Elias – What To Do When you Suspect Ehlers-Danlos Syndrome
  • Enduring continuing education credits (CEUs) available for physicians, nurses, pharmacists, and physician assistants
• University of New Mexico Health Sciences Center Hypermobile type Ehlers-Danlos Syndrome (hEDS) and joint hyper-mobility Provider Letter
  • hEDS Provider Letter
• University of New Mexico Peds Genetics Referral Form

• University of New Mexico Health Sciences Center Hypermobile type Ehlers-Danlos Syndrome (hEDS) and joint hyper-mobility Provider Letter
  • hEDS Provider Letter
• University of New Mexico Peds Genetics Referral Form

• Kirsten (Co-Lead)
• Sandy (Co-Lead)
• Cathy
• Josey
• Kaitlyn
• Kori
• Michael
• Susan
• Desiree
• Winton
• Jennifer (Jenni)
• Frances
• Kelly
• Michelle