Welcome to the Utah MSRGN team. We are here to help answer questions you may have about genetic services in Utah.
Our featured project, Where is Bear, is designed to help answer questions about your child or loved one’s developmental delays.
For some children, developmental delays can be an early sign of a genetic condition.
Please check out our Utah State Team infographic here to see our other projects and accomplishments.
Please click on the boxes below for resources or contact us if you have more questions and would like to connect.
Contact the Utah Genetic NavigatorDo you need help navigating genetics in Utah?
- Email our Utah Genetic Navigator at utahgenetic@gmail.com
Click here to see more Utah Resources
Family & Parent Support
Support & Training for raising a child with special health care needs
Newborn Screening Support
Information about Newborn Screening
Early Childhood Support
Help for infants and toddlers who have developmental delays and disabilities
Health Care Support
Help to get a diagnosis, and to get insurance coverage for a diagnosis
Care coordination, education, intervention, and transition assistance
Information on specific conditions/diagnoses, caring for individuals with special health care needs, and finding local providers of clinical and social services
Medicaid Support
Questions about Medicaid?
Waiver Support
Resource list of Waivers available in Utah
Education Support
One-on-one Parent Consultant support for navigating Individual Education Plans (IEPs), Transition to Adulthood, and More
Learn more about the Where is Bear book?
- Where is Bear is a fun book to enjoy with your child while checking that they meet the milestones of a typical two-year-old.
- Download a PDF of “Where’s Bear”
- View and order developmental books for all ages from the CDC.
- Visit Utah’s “Learn the Signs. Act Early.” website for more information.
Concerned about developmental progress?
- View the Algorithm (for Healthcare Professionals)
- View the Algorithm in Spanish (for Healthcare Professionals)
- Learn more about the Algorithm
- This algorithm provides guidance for primary care clinicians in determining the cause of developmental delay, including the initial genetic evaluation.
Concerned about joint hypermobility or suspecting Ehlers-Danlos syndrome?
- View the Algorithm (for Healthcare Professionals)
- Learn more about the Algorithm
- This algorithm serves as a practical guide to assist primary care providers in diagnosing Hypermobile Ehlers-Danlos syndrome with step-by-step recommendations for diagnosis, management, and referral.
- MSRGN Time 4 Genetics (January 6th, 2022) Webinar w/ Abdallah (Abe) Elias – What To Do When you Suspect Ehlers-Danlos Syndrome
- Enduring continuing education credits (CEUs) available for physicians, nurses, pharmacists, and physician assistants
Interested in who we are?