![Mountain States Genetics [logo]](https://www.mountainstatesgenetics.org/wp-content/themes/mountain-states/images/logo.png){kind=logo}
This page contains links to resources to help with the transition out of Pre-school and into Kindergarten and throughout their school-age years. It is also highly recommended to look through the other resources on this page as they may help you with this stage of your child’s development. For more specific questions that may not be answered by resources on this page, consider contacting the Colorado genetic navigator at Coloradogenetic@gmail.com
Updating Individualized Educational Plans (IEP) for K-12 and Registering for KindergartenExplore these resources if:
- You have questions regarding the transition out of preschool and into kindergarten
- You need information regarding the Individualized Education Program (IEP)
- You need a Colorado State approved form (intended to serve as guidance in the development of an IEP)
- You need information and support regarding graduation guidelines for students with IEP’s
Transitions to Kindergarten Resources | CDE
Resources – Individualized Education Program (IEP) | CDE
2020 Colorado Academic Standards – Family and Community Guides
Graduation Guidelines – Students with Disabilities and IEPS | CDE
If you have not done so already, please consider exploring and completing the following items:
Social Security Administration (SSI/SSDI)Contact if:
- You need to apply for disability benefits
- You need to manage your social security benefits
- For information regarding general SSI benefits and regulations
The SSI/SSDI program pays benefits to adults and children who meet requirements for a qualifying disability and have limited income resources.
How to tell if your child is eligible for disability benefits
US Social Security Administration Website
Contact if:
- You need to apply for Colorado Medicaid programs
- You need to contact your county Department of Human Services to request support
- You have questions about what services are available for your child
Entitlement programs are government programs that guarantee certain benefits to a particular group.
Colorado Department of Health Care Policy & Financing
Application for Health First Colorado and Child Health Plan Plus
Colorado Department of Human Services
Contact your county human services department
Entitlement programs
Colorado PEAK Benefit Information
Colorado PEAK Log-In or Apply for Benefits
Overview of Premium Assistance/Reimbursement Programs
State Health Access Data Assistance Center
Adult Financial Programs | Colorado Department of Human Services
Supplemental Nutrition Assistance Program (SNAP) | Colorado Department of Human Services
Non-entitlement Services (residential or community living supports, employment supports, day or vocational supports, habilitation, transportation services, family support, assistive technology (AT), peer support, and mentors)
Community Development Block Grant (CDBG) | Department of Local Affairs
Find Your Parent Center | Center for Parent Information and Resources
Contact if:
- You need to find your Community Center Board for support
- You need to contact Single Entry Point Agency to apply for benefits and access to resources
- You need to apply for a Medicaid waiver based on your child’s physical or developmental disability
Medicaid Waivers provide access to federal and state programs and health benefits for individuals who meet eligibility requirements but waive some requirements required by traditional Medicaid.
Find your local Community Center Board (waivers, FSBT, Mill Levy) or Single Entry Point (waivers) to apply for waivers, grants (FSBT), and other funding (Mill Levy)
Community Centered Boards | Colorado Department of Health Care Policy & Financing
Single Entry Point Agencies | Colorado Department of Health Care Policy & Financing
Waivers for Children
Programs for individuals with physical or developmental disabilities
Colorado Home and Community-Based Services (HCBS) Waivers
Colorado – Children’s Medicaid Waiver Program
Children’s Habilitation and Residential Program (CHRP)-Deskguide-May 2020
Contact if:
- You are in need of assistance to find a genetic clinic near you
Find a Clinic – Mountain States Genetics
Children’s Hospital Colorado – Anschutz Medical Campus
13123 East 16th Ave., Aurora, CO 80045
Main Hospital: 720-777-1234
Genetics and Inherited Metabolic Diseases: 303-724-2370
Special Care Clinic: 720-777-6739
Developmental Pediatrics: 720-777-6630
Explore these resources if:
- You need information regarding end-of-life planning to ensure your child is protected and cared for in your absence
- You are looking for programs/assistance in setting up trust funds for your child (Important if your child has access to government programs which may have income requirements. For example: In the event of both parents passing, your life insurance payment to your child may disqualify them from programs unless it is placed in a protected trust).
Advanced Care Planning and Living Will
PLAN, Inc : Planned Lifetime Assistance Network
Sibling Leadership Network (SLN)
Academy of Special Needs Planners
The Arc- The Arc | For People With Intellectual & Developmental Disabilities
Explore these resources if:
- You need support to set up a special needs trust or ABLE account
- You are looking for a qualified financial planner or attorney
Special Needs Trust information
Certified Financial Planner Board of Standards, Inc.
The Academy of Special Needs Planners (for an attorney or financial planner)
The Special Needs Alliance (for an attorney)
The Financial Planning Association (for a financial planner)
Learn What to Expect from a Financial Professional
Colorado Fund for People with Disabilities
Research tools to check broker Background and Experience
Financial Industry Regulatory Authority
Investment Advisor Public Disclosure
ColoradoABLE Financial Saving Assistance
TheArc Center for Future Planning
Explore these resources if:
- You need information regarding types of insurance and its benefits
- You need to contact the Commissioner of Colorado’s Division of Insurance
- You need to file a complaint with the Commissioner regarding an insurance company or agent
Below you will find a number of different links to resources that may help in navigating the 5 year to 21 year old time period:
Colorado Genetics Navigator email – Coloradogenetic@gmail.com
Colorado Genetic Connections Facebook Group
Mountain States Regional Genetics Network (MSRGN) Home
MSRGN Colorado State Team Page
Red Flags 4 Genetics Handout (English)
Red Flags 4 Genetics Handout (Spanish)
Early Childhood MilestonesContact if:
- You have concerns regarding your child’s development (speech, physical, fine motor, etc)
- You need to know if your child’s development is where is should be for their age
- You need suggestions on how to help work on your child’s development at home
CDC Learn the Signs, Act Early
Contact if:
- You need to understand the different options for legal support to care for an adult child with a disability
- You need to begin the process for legal support to care for an adult child with a disability
The National Academy of Elder Law Attorneys (NAELA)
Disability Law Colorado – English
Disability Law Colorado – Spanish
Contact if:
- You need support finding or acquiring assistive technology for your child with a disability
- You need access to assistive technology to help your child with a disability lead a more independent life
Assistive Technology is an item, piece of equipment, software program, or product that is used to increase, maintain or improve the daily living circumstances with a person with a disability.
Assistive Technology Center AT3 – AT3 Center
Explore these resources if:
- Your child needs a wheelchair or other support equipment to aid in daily living
- You need help finding fun, safe toys for your child
- You are in need of special equipment that will adapt to your child’s needs
Explore these resources if:
- You want your child to participate in fun, safe activities regardless of their disability
- You need programs/sports aimed at supporting individuals with disabilities
Disabled Sports USA – Move United
Miracle League Metro Denver | Colorado | Sports Made Possible
TOPSoccer Program Overview — CSA
iCan Bike Hosts – iCan Shine, Inc.
Explore these resources if:
- You or your child need mental health support
- You are worried about your child’s behavior and are looking for support
National Alliance on Mental Illness (NAMI)
Empower/Recovery Centers for Mental Health Self-advocacy – National Empowerment Center
National Association of State Mental Health Program Directors
National Association of County Behavioral Health and Developmental Disabilities Directors
Colorado Office of Behavior Health
Mental Health Partners Colorado
The National Child Traumatic Stress Network
National Institute of Mental Health
Federation of Families for Children’s Mental Health – Mental Health Services | Lakewood, CO
Contact if:
- You need to know what supporting documents are needed to obtain a Colorado state ID
- You need to make an appointment at your local DMV
- You would like to know the different options of identification available in Colorado
- You would like to obtain a disability placard
I’m a Driver/Passenger with Disabilities | Department of Revenue
Contact if:
- You are interested in how you can get paid to be your adult child’s caregiver
- You need a trusted respite provider to care for your child
- You need to find childcare or day programs for your adult child with a disability
How to Get paid to be Your Adult Child’s Caregiver
Parents as their child’s Certified Nursing Aide (CNA) | Department of Public Health & Environment
In-Home Support Services (IHSS) | Colorado Department of Health Care Policy & Financing
Pediatric Personal Care Services | Colorado Department of Health Care Policy & Financing
ARCH National Respite Network and Resource Center
Community Residential Homes/IDD Group Homes | Department of Public Health & Environment
KidStreet, Aurora | Children’s Hospital Colorado
Megan’s Place – Wheat Ridge Colorado Respite for Kids with Developmental Disabilities, Ages 3-18
Child Care Assistance | Colorado Department of Human Services
Contact if:
- You need to find daily transportation for your child to pursue everyday functions
- You need transportation for an emergency medical need or trip
American Public Transportation Association-Colorado Transit Links
National Aging and Disability Transportation Center
National Center for Mobility Management
Request an Air Ambulance Medical Flight | Angel MedFlight
Veyo | Non-Emergency Medical Transportation
Explore these resources if:
- You need to understand your rights in regard to obtaining services through your local school district
- You need support/resources on how to set up a health plan, 504 or IEP for your child
- You need an agency or attorney to assist in resolving an issue with your child’s education
Colorado Department of Educations- Parents and Families of a child with a Disability
The ARC Colorado – Family Resources
US Department of Education – IDEA site
School Nursing and Health – Health Conditions & Care Plans | CDE
Special Education Advisory Committee (SEAC)
Parent, School & Community Liaison- David Ramer, Program Assistant
Phone: (303) 866-6943 ramer_d@cde.state.co.us
Parents Encouraging Parents (PEP) | CDE
Find Your Special Education Director in Colorado | CDE
Office of Special Education | CDE
10 Steps in the Special Education Process
Disability Law Colorado – English
Disability Law Colorado – Spanish
Colorado Dept. of Education – Home School Resources
Resource Packet for Families New to Education Services (Boulder Valley School District)
Individuals with Disabilities Education Act
Supporting Emotional Needs of the Gifted (SENG)
Colorado Association for Gifted and Talented (CAGT)
Find Your Parent Center | Center for Parent Information and Resources
Center for Appropriate Dispute Resolution in Special Education
Colorado Department of Education Parent and Family resources
Genetic Education Materials for School Success
Resources – Individualized Education Program (IEP) | CDE
Understood – Mission for Learning Differences and Disabilities
Contact if:
- You need to make preparations for your child in case of an emergency
- You want more information about how your child can be supported in case of emergency
Emergency: 911
Poison Control: 1-800-222-1222
Colorado Poison Control Center
Emergency Preparedness for People with Disabilities
The Centers for Disease Control and Prevention: Emergency Preparedness
Food and Drug Administration: Colorado Departments: Health
Emergency Readiness: Build a Disaster Supply Kit
FEMA Office of Disability Integration and Coordination
