Emergency/poison control/abuse/domestic violence/crisis/suicide prevention Support/advocacy organizations & other resources

National Association of State Directors of Developmental Disabilities Services

ADA Participatory Action Research Consortium (ADA-PARC)

Family Voices Colorado

Ability Connection Colorado – Home

Ability Connection Colorado – Parent to Parent

The ARC Colorado

March of Dimes – Home

National Federation of Families

Federation of Families for Children’s Mental Health – Colorado

Disability Law Colorado

El Grupo Vida

Child and Adolescent Health Measurement Initiative (CAHMI)

HRSA – Children and Youth with Special Health Care Needs (CYSHCN)

Healthy Children – AAP Parenting Website

Learn the Signs Act Early State Ambassadors

Special Needs Blog

Facebook Page: Special Needs

CDC – Learn the Signs Act Early Milestones

Easterseals Questionaire

AAP Directory for Pediatricians

American Board of Family Medicine

Find a Federally Qualified Health Center (FQHC)

Learn the Signs Act Early- Questions to Ask

Medical Home Portal

Health Resources and Services Administration

American Academy of Family Physicians

American Academy of Pediatrics

Association of Maternal and Child Health Programs

Association of State and Territorial Health Officials

Association of Women’s Health, Obstetrics, and Neonatal Nurses

Child Neurology Society

Clinical and Laboratory Standards Institute (for healthcare providers)

Together Against Bullying › Friends Colorado

Colorado Parent Guide

Colorado Life Trak

Colorado Talking Book Library

National Coordinating Center for Regional Genetics Networks Resource Repository- Airtable – Resource Repository Grid

Health Care Program for Children with Special Needs

National Center for Biotechnology Information (nih.gov)

Special needs planning resources- Special Needs Resources | Resources for Children with Special Needs | M & L Special Needs Planning

Special Needs Resource Project- Special Needs Resource Project: COLORADO Resource Links (snrproject.com)

National Institute of Child Health and Human Development (NICHD)

Ronald McDonald House of Denver (rmhc-denver.org)

Aging and Disability Resource Center | DRCOG

Aging & Disability Resource Center (ADRC) | NM Aging & Long-Term Services

Kepro BFCC-QIO (keproqio.com)

Home | Department of Public Health & Environment (colorado.gov)

Contact Us | Colorado Department of Health Care Policy & Financing

Children’s Hospital Colorado | Children’s Hospital Colorado (childrenscolorado.org)

The Denver Hospice

Kid’s Hospital & ER | Rocky Mountain Hospital for Children

Home – Family Caregiver Alliance

National Parent Helpline | 1.855.4A.PARENT (1-855-427-2736)

Center for the Prevention of Youth Violence – Johns Hopkins Bloomberg School of Public Health (jhsph.edu)

Colorado Medicaid Long Term Care | Eligibility Guidelines 2021 (seniorplanning.org)

CYSHCNET

AUCD Home

Homepage – CCHAP

Healthy Children Parenting Guides

Center for People With Disabilities | (cpwd.org)

Home (aap.org)

SPAN Parent Advocacy Network | Empowered Parents: Educated, Engaged, Effective! (spanadvocacy.org)

Center for American Progress

Justifying Medical Necessity – Family Voices Colorado

Association of University Centers on Disabilities

Self-Advocacy: Strategies for All Ages – Smart Kids

CAHMI – Home

Little Lobbyists

Passport to Good Healthcare

Medical equipment lending- About Us | Assistance League – Denver

GoodHealthWill – Healthcare Supplies

Colorado Cross-Disability Coalition | Home Page (ccdconline.org)

Easterseals | Connect Locally

National Federation of Families, Family Voice, Family Peer Support (ffcmh.org)

Home – University of Colorado Anschutz

Home – Special Kids

CPN | Courageous Parents Network

Home | Ability Connection Colorado

Home | The Thrive Center

Transition Guide By Age – Family Voices Colorado

SSI & SSDI Medicaid Waivers for children Waivers for adults Early childhood milestones Aging Education/transition/early intervention

Understood – Mission for learning differences and disabilities

The ARC Colorado – Family resources

US Department of Education

Wrights Law

School Nursing and Health – Health Conditions & Care Plans | CDE

Special Education Advisory Committee (SEAC)
Parent, School & Community Liaison- David Ramer, Program Assistant
Phone: (303) 866-6943 ramer_d@cde.state.co.us

Parents Encouraging Parents (PEP) | CDE (state.co.us)

Find Your Special Education Director in Colorado | CDE (state.co.us)

Office of Special Education | CDE (state.co.us)

Disability Law Colorado – English

Disability Law Colorado – Spanish

PEAK Parent Center

Colorado Dept. of Education – Home School Resources

UPlift Family Partnership Network

Resource Packet for Families New to Education Services

Dispute Resolution Guidance

Individuals with Disabilities Education Act

Colorado Association for Gifted and Talented (CAGT) (coloradogifted.org)

Find Your Parent Center | Center for Parent Information and Resources (parentcenterhub.org)

About 4 — Dispute Direction Service

Colorado Department of Education Parent and Family resources

Genetic Education Materials for School Success

Colorado READ Act | CDE (state.co.us)

Resources – Individualized Education Program (IEP) | CDE (state.co.us)

Related Services | CDE (state.co.us)

Colorado IEP Forms | CDE (state.co.us)

Early Intervention

Early Intervention- Sorted by States

Preschool

Find your local Child Find/Special Education Preschool contact

Print the Colorado Preschool Program (CPP) Handbook

Colorado Preschool Special Education Services

Bal Swan Children’s Center

Kindergarten

Family and Community Guide for Kindergarten

Transitions to Kindergarten Resources | CDE (state.co.us)

Adult Transition

BVSD Transition Planning

Students with Disabilities Graduation Guidelines – Colorado Dept. of Education

Educational Transition for Students with Neurological Conditions

Transition Services | Center for People With Disabilities (cpwd.org)

Got Transition®

Secondary Transition Professional Development | CDE (state.co.us)

Employment/college/vocational training/adult training Guardianship/conservatorship/limited guardianship/successor guardian/joint bank account/representative payee/durable Power of Attorney (POA)/appointment of advocate & authorization/HIPAA release form/supported decision making (by state): Medicare eligibility Financial planning Legal Wills, Letters of Intent (LOI), and life course planning resources Colorado ID Living arrangements Assistive technology Equipment Recreation and leisure Behavioral and mental health Childcare/Respite/Personal Assistive Services Insurance (health, property, disability, long-term care, life) Emergency preparedness Disability plaque Transportation Newborn Screening (NBS)

Newborn screening includes a series of screenings: Some examples include blood spot screening, pulse oximetry screening for critical congenital heart disease, and hearing screening.

***Note that there is more to screening than just the examples listed here. Newborn screening (NBS) is an interconnected system of organizations, programs, and experts who work together to make sure that caregivers and health professionals have the information they need to understand NBS and know where to find more information when needed.

Navigate NBS Booklet

English NBS Home

Spanish NBS Home

English NBS Brochure

Spanish NBS Brochure

Expecting Health

Baby’s First Test

HRSA Newborn Screening Information

Federal Agencies

Centers for Disease Control and Prevention (CDC)

Advisory Committee
on Heritable Diseases in Newborns and Children

Recommended Uniform Screening Panel (RUSP)

National Institutes of Health (NIH)

National Library of Medicine (NLM)

Professional and Medical Organizations

Newborn Screening Translational Research Network

ActSheets (guide & resources for healthcare providers)

NewSTEPs

Association of Public Health Laboratories (APHL)

APHL Statements on Newborn Screening

AWHONN Statement on Newborn Screening

NSGC Statement on Newborn Screening

SIMD Statement on Newborn Screening

Support/Advocacy Organizations

Screening Technologies and Research in Genetics (STAR-G)

Save Babies Through Screening Foundation