American Association of Poison Control Centers (aapcc.org)
Colorado Child Abuse and Neglect Hotline Reporting System | Colorado Department of Human Services
The Nation’s Leading Grassroots Voice on Domestic Violence (ncadv.org)
Home – Colorado Crisis Services
National Association of State Directors of Developmental Disabilities Services
ADA Participatory Action Research Consortium (ADA-PARC)
Ability Connection Colorado – Home
Ability Connection Colorado – Parent to Parent
National Federation of Families
Federation of Families for Children’s Mental Health – Colorado
Child and Adolescent Health Measurement Initiative (CAHMI)
HRSA – Children and Youth with Special Health Care Needs (CYSHCN)
Healthy Children – AAP Parenting Website
Learn the Signs Act Early State Ambassadors
CDC – Learn the Signs Act Early Milestones
AAP Directory for Pediatricians
American Board of Family Medicine
Find a Federally Qualified Health Center (FQHC)
Learn the Signs Act Early- Questions to Ask
Health Resources and Services Administration
American Academy of Family Physicians
American Academy of Pediatrics
Association of Maternal and Child Health Programs
Association of State and Territorial Health Officials
Association of Women’s Health, Obstetrics, and Neonatal Nurses
Clinical and Laboratory Standards Institute (for healthcare providers)
Together Against Bullying › Friends Colorado
Health Care Program for Children with Special Needs
National Center for Biotechnology Information (nih.gov)
National Institute of Child Health and Human Development (NICHD)
Ronald McDonald House of Denver (rmhc-denver.org)
Aging and Disability Resource Center | DRCOG
Aging & Disability Resource Center (ADRC) | NM Aging & Long-Term Services
Home | Department of Public Health & Environment (colorado.gov)
Contact Us | Colorado Department of Health Care Policy & Financing
Children’s Hospital Colorado | Children’s Hospital Colorado (childrenscolorado.org)
Kid’s Hospital & ER | Rocky Mountain Hospital for Children
Home – Family Caregiver Alliance
National Parent Helpline | 1.855.4A.PARENT (1-855-427-2736)
Colorado Medicaid Long Term Care | Eligibility Guidelines 2021 (seniorplanning.org)
Healthy Children Parenting Guides
Center for People With Disabilities | (cpwd.org)
SPAN Parent Advocacy Network | Empowered Parents: Educated, Engaged, Effective! (spanadvocacy.org)
Justifying Medical Necessity – Family Voices Colorado
Association of University Centers on Disabilities
Self-Advocacy: Strategies for All Ages – Smart Kids
Medical equipment lending- About Us | Assistance League – Denver
GoodHealthWill – Healthcare Supplies
Colorado Cross-Disability Coalition | Home Page (ccdconline.org)
National Federation of Families, Family Voice, Family Peer Support (ffcmh.org)
Home – University of Colorado Anschutz
CPN | Courageous Parents Network
How to tell if your child is eligible for disability benefits
US Social Security Administration Website
Entitlement programs
Colorado PEAK Benefit Information
Colorado PEAK Log-In or Apply for Benefits
Overview of Premium Assistance/Reimbursement Programs
State Health Access Data Assistance Center
Adult Financial Programs | Colorado Department of Human Services
Supplemental Nutrition Assistance Program (SNAP) | Colorado Department of Human Services
Non-entitlement Services (residential or community living supports, employment supports, day or vocational supports, habilitation, transportation services, family support, assistive technology (AT), peer support, and mentors)
Community Development Block Grant (CDBG) | Department of Local Affairs (colorado.gov)
Find Your Parent Center | Center for Parent Information and Resources (parentcenterhub.org)
Programs for Individuals with Physical or Developmental Disabilities
Children’s Habilitation and Residential Program (CHRP)-Deskguide-May 2020 (colorado.gov)
Parent Led Transition Cadre: PARENT LED TRANSITION CADRE – Home (weebly.com)
Programs for Individuals with Physical or Developmental Disabilities
SIS evaluation
Aging and Disability Resource Center | DRCOG
Aging & Disability Resource Center (ADRC) | NM Aging & Long-Term Services (state.nm.us)
Understood – Mission for learning differences and disabilities
The ARC Colorado – Family resources
School Nursing and Health – Health Conditions & Care Plans | CDE
Special Education Advisory Committee (SEAC)
Parent, School & Community Liaison- David Ramer, Program Assistant
Phone: (303) 866-6943 ramer_d@cde.state.co.us
Parents Encouraging Parents (PEP) | CDE (state.co.us)
Find Your Special Education Director in Colorado | CDE (state.co.us)
Office of Special Education | CDE (state.co.us)
Disability Law Colorado – English
Disability Law Colorado – Spanish
Colorado Dept. of Education – Home School Resources
UPlift Family Partnership Network
Resource Packet for Families New to Education Services
Individuals with Disabilities Education Act
Colorado Association for Gifted and Talented (CAGT) (coloradogifted.org)
Find Your Parent Center | Center for Parent Information and Resources (parentcenterhub.org)
About 4 — Dispute Direction Service
Colorado Department of Education Parent and Family resources
Genetic Education Materials for School Success
Colorado READ Act | CDE (state.co.us)
Resources – Individualized Education Program (IEP) | CDE (state.co.us)
Related Services | CDE (state.co.us)
Colorado IEP Forms | CDE (state.co.us)
Early Intervention
Early Intervention- Sorted by States
Preschool
Find your local Child Find/Special Education Preschool contact
Print the Colorado Preschool Program (CPP) Handbook
Colorado Preschool Special Education Services
Kindergarten
Family and Community Guide for Kindergarten
Transitions to Kindergarten Resources | CDE (state.co.us)
Adult Transition
Students with Disabilities Graduation Guidelines – Colorado Dept. of Education
Educational Transition for Students with Neurological Conditions
Transition Services | Center for People With Disabilities (cpwd.org)
Secondary Transition Professional Development | CDE (state.co.us)
Division of Vocational Rehabilitation (colorado.gov)
Employment/College/Vocational Training/Adult Training
Community and Work Participation Disparities for People with Disabilities
Employment Help for People with Disabilities
Vocational Rehabilitation for Young Adults
Division of Vocational Rehabilitation Colorado
U.S. Department of Labor Office of Disability Employment Policy Topics
Government JobCorps Training Program
US Colleges with Learning Disability Programs
Employment rights
Employee Rights | U.S. Department of Labor (dol.gov)
American with Disabilities Act (ADA) of 1990
Guardianship Alliance of Colorado | Ability Connection Colorado
Colorado Guardian and Conservator Subcategory List
Colorado Fund for People with Disabilities – CFPD
Colorado Judicial Branch – Self Help – Guardianship for Adults – Detailed Instructions
Special Needs Trust information
Certified Financial Planner Board of Standards, Inc. – Option 1 or Option 2
The Academy of Special Needs Planners (for an attorney or financial planner)
The Special Needs Alliance (for an attorney or a list of financial advisor)
The Financial Planning Association (for a financial planner)
Learn what to expect from a financial professional
Colorado Fund for People with Disabilities
Research tools to check broker background and experience
Financial Industry Regulatory Authority
ColoradoABLE Financial Saving Assistance
TheArc Center for Future Planning
The National Academy of Elder Law Attorneys (NAELA)
Disability Law Colorado – English
Disability Law Colorado – Spanish
Hope Trust’s Life Plan portal and app
Sibling Leadership Network (SLN)
Academy of Special Needs Planners
Person Centered Plan/Charting the Life Course
The Arc- The Arc | For People With Intellectual & Developmental Disabilities
Colorado DMV Identification Cards
Drivers Information and Guidelines | Department of Revenue – Division of Motor Vehicles
Colorado License, Permit, and ID Card Checklist
Colorado Driver/Passenger with Disabilities Guide | Department of Revenue – Motor Vehicle
Association for community living: ACLBoulder
Center for People with Disabilities
Colorado Centers for Independent Living
Assisted Living Options for People with Disabilities
Specialized Housing for People with Disabilities
Colorado Statewide Independent Living Council
US Department of Housing and Urban Development
Mercy Housing Affordable Housing Options
Housing Choice Voucher Program
Disabled Sports USA – Move United
Miracle League Metro Denver | Colorado | Sports Made Possible
TOPSoccer Program Overview — CSA
iCan Bike Hosts – iCan Shine, Inc.
National Alliance on Mental Illness (NAMI)
Empower/Recovery Centers for Mental Health Self-advocacy – National Empowerment Center
National Association of State Mental Health Program Directors
National Association of County Behavioral Health and Developmental Disabilities Directors
Mental Health Partners Colorado
The National Child Traumatic Stress Network
National Institute of Mental Health
Federation of Families for Children’s Mental Health – Mental Health Services | Lakewood, CO
How to get paid to be your adult child’s caregiver – Additional link
Parents as their child’s Certified Nursing Aide (CNA) | Department of Public Health & Environment
In-Home Support Services (IHSS) | Colorado Department of Health Care Policy & Financing
Pediatric Personal Care Services | Colorado Department of Health Care Policy & Financing
ARCH National Respite Network and Resource Center
Community Residential Homes/IDD Group Homes | Department of Public Health & Environment
KidStreet, Aurora | Children’s Hospital Colorado
Megan’s Place – Wheat Ridge Colorado Respite for Kids with Developmental Disabilities, ages 3-18
Child care assistance | Colorado Department of Human Services
Emergency: 911
Poison Control: 1-800-222-1222
Colorado Poison Control Center (copoisoncenter.org)
Emergency Preparedness for People with Disabilities
Disability Preparedness Center
The Centers for Disease Control and Prevention: Emergency Preparedness
Food and Drug Administration: State Health Departments
American Public Transportation Association
National Aging and Disability Transportation Center
National Center for Mobility Management
Request an Air Ambulance Medical Flight | Angel MedFlight
Veyo | Non-Emergency Medical Transportation
Newborn screening includes a series of screenings: Some examples include blood spot screening, pulse oximetry screening for critical congenital heart disease, and hearing screening.
***Note that there is more to screening than just the examples listed here. Newborn screening (NBS) is an interconnected system of organizations, programs, and experts who work together to make sure that caregivers and health professionals have the information they need to understand NBS and know where to find more information when needed.
HRSA Newborn Screening Information
Federal Agencies
Centers for Disease Control and Prevention (CDC)
Advisory Committee
on Heritable Diseases in Newborns and Children
Recommended Uniform Screening Panel (RUSP)
National Institutes of Health (NIH)
National Library of Medicine (NLM)
Professional and Medical Organizations
Newborn Screening Translational Research Network
ActSheets (guide & resources for healthcare providers)
Association of Public Health Laboratories (APHL)
APHL Statements on Newborn Screening
AWHONN Statement on Newborn Screening
NSGC Statement on Newborn Screening
SIMD Statement on Newborn Screening