News

MSRGN Post-Genetic Summit LUNCH and ASK Sessions!

November 1, 2022 — Are you planning on attending our Genetics Summit on November 9-10? Would you like to connect with MSRGN staff after the event and learn more about MSRGN, our programs and initiatives? All are welcome to join us for one or both POST- Genetics Summit Lunch and Ask sessions! Session #1 Friday, November 11th 2pm ET/1pm... Read More

October 12th Genetics Pop-Up: Red Flags 4 Genetics

September 22, 2022 — Join us to learn more about genetics! Experience a safe arena to ask questions, learn about resources such as the Red Flags 4 Genetics Handout for families and connect with others who have explored genetics for their own loved ones. At this virtual event on October 12, 2022 MSRGN will be sharing our Red Flags... Read More

MSRGN Genetics Summit 2022 Registration is OPEN!

August 25, 2022 — The registration is now OPEN for the Virtual MSRGN Genetics Summit 2022 to be held on November 9-10, 2022. The Genetics Summit is a virtual summit to educate, engage, and connect families, providers, and public health professionals around contemporary topics in genetics. The agenda, speaker information, promotional toolkit, exhibitor information, and CME/CEU information can all be... Read More

August 17th Genetics Pop-Up: VUS Video Premiere

August 5, 2022 — Join us to learn more about genetics! Experience a safe arena to ask questions, learn about resources, watch the video about Variants of Uncertain Significance (VUS’s) and connect with others who have explored genetics for their own loved ones. At this virtual event on August 17, 2022 MSRGN will be premiering our Genetics Explained: Variants... Read More

Cross Pollination Funding Application OPEN

July 20, 2022 — For year 6 of the grant cycle, this NEW funding opportunity is available for ANYONE in the mountain states region (AZ, CO, MT, NV, NM, TX, UT, WY) who has an idea they would like to submit which improves access to genetics services. This funding opportunity will prioritize submissions where individuals from 2 or more... Read More

Public Health Genetics Week: May 23-27

May 20, 2022 — Public Health Genetics Week is next week! May 23-27, 2022 #PHGW #PublicHealthGenetics The goal of this week is to raise awareness of genetics and genetic information and to celebrate all those involved in the field, including family and patient advocates, genetics professionals, students, and nonprofits, among others. Learn more about upcoming programming for Public Health... Read More

MSRGN Launches SPANISH Red Flags 4 Genetics Handout for Families and Providers

April 27, 2022 — In June 2021, MSRGN launched the ENGLISH Version of the Red Flags 4 Genetics Handout for Families and Providers. Today, on April 27, 2022, MSRGN is launching the SPANISH Version of  Señales de alarma sobre genética / Red Flags 4 Genetics Handout for Families and Providers. To learn more about the family survey and history... Read More

MSRGN honors Newborn Screening Awareness Month #2021NBS

September 1, 2021 — September is Newborn Screening Awareness Month! MSRGN has a long tradition of supporting, promoting and encouraging newborn screening professionals, education and awareness in our 8-state region. Check out these resources and upcoming events/resources that honor Newborn Screening Month! (click on words underlined for more info about the event): #2021NBS Toolkit from Expecting Health 2021 NBSTRN... Read More

Registration OPENS for the MSRGN Genetics Summit 2021

August 13, 2021 — The registration is now OPEN for the Virtual MSRGN Genetics Summit 2021 to be held on November 9-10, 2021. The Genetics Summit is a virtual summit to educate, engage, and connect families, providers, and public health professionals around contemporary topics in genetics. The Agenda is available here, Speaker information here, and CME/CEU information here. 

MSRGN Launches Red Flags 4 Genetics Handout for Families and Providers

June 28, 2021 — The MSRGN’s Genetic Ambassador group designed a survey for families which was shared in January 2021 and collected responses until March of 2021. This survey asked families (whose child went on to get a genetic diagnosis) about the “red flags” or symptoms, warning signs, or details that concerned them as parents. The responses of 114... Read More