News

Positive Newborn Screen Family Outcomes Listening Session

February 8, 2024 — MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

Genetic Pop-Ups in January and February

January 14, 2024 — Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here  

Time 4 Genetics Webinar~ Variants of Uncertain Significance: January 29, 2024

December 13, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: Are all Variants of Uncertain Significance Created Equal? A Rough Guide January 29, 2024 (at 11am PT, noon MT, 1pm CT, and 2pm ET)   featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital and... Read More

Time 4 Genetics Webinar~ Seizures and Genetics: Sept. 26, 2023

July 31, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: The Genetics of Pediatric Seizures and Epilepsy September 26, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Amanda G. Sandoval Karamian, MD Assistant Professor of Pediatric Neurology & Epilepsy University of Utah  Primary Children’s Hospital To register please click: here For a clickable... Read More

Time 4 Genetics Webinar~ Newborn Screening: May 16, 2023

March 30, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: 60 Years of Newborn Screening in a Nutshell May 16, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Guest Presenter: Dietrich Matern, M.D., PH.D. Clinical Biochemical Geneticist Director, Biochemical Genetics Lab, Mayo Clinic To register please click: here For a clickable and ready... Read More

April 24th Genetics Pop-Up: DNA Day

March 20, 2023 — Join us to learn more about genetics! Experience a safe arena to ask questions, learn about resources and connect with others who have explored genetics for their own loved ones. At this virtual event on April 24, 2023 MSRGN will be talking about DNA and Chromosomes! You won’t want to miss learning about these key concepts... Read More

MSRGN and NYMAC Launch Genetic Recipe Infographics

January 12, 2023 — Mountain States Regional Genetics Network (MSRGN) in collaboration with The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is pleased to share 2 new infographic resources: The Genetic Recipe– this infographic presents an analogy based infographic that helps in the understanding of genetic terms like DNA, gene, chromosome and genome as related to a recipe... Read More

February 21st Genetics Pop-Up: Rare Disease Day

December 31, 2022 — Join us to learn more about genetics! Experience a safe arena to ask questions, learn about resources and connect with others who have explored genetics for their own loved ones. At this virtual event on February 21, 2023 MSRGN will be talking about Rare Disease Day! You won’t want to miss learning about this valuable resource... Read More

Webinar with TX ODPC featuring MSRGN and Texas Genetic Navigator: January 12, 2023

December 20, 2022 — Webinar: Resources for Genetics in Texas and Beyond Join the HHSC Office of Disability Prevention for Children (ODPC) on January 12, 2023, from 10-11 a.m. for a free, live webinar titled, “Resources for Genetics in Texas and Beyond.” Featuring representatives from Mountain States Regional Genetics Network (MSRGN), the webinar will share genetic resources for families,... Read More