COVID 19 Resources for Individuals and Families with Genetic Conditions
During this time of the COVID 19 (coronavirus) pandemic, here are some resources that may be helpful to individuals and families impacted by genetic conditions. If you have any medical questions during this time, please consult you or your loved one’s primary care physician.
For the most up to date public health information please check the Center for Disease Control’s (CDC) COVID 19 webpage here.
If you reside in one of the 8 states (AZ, CO, MT, NV, NM, TX, UT, WY) in our Mountain States Region, please check our state-specific pages for COVID 19 state-specific resources.
The National Coordinating Center for the Regional Genetic Networks had developed this infographic resource (click on the graphic to access a clickable pdf)
General Resources for Families of Children and Youth with Special Health Care Needs
American Academy of Pediatrics (AAP): COVID 19 Info for Families of Children and Youth with Special Health Care Needs
Family Voices COVID 19 resources
Lucille Packard Foundation for Children’s Health COVID Resources
Toolkits and Worksheets (that Families can complete together)
Southeast Regional Genetics Network: Emergency Preparedness
American College of Emergency Physicians – Emergency Plan for Special Needs Families
Genetic Condition-Specific COVID-19 Resources:
Rare Diseases 2 (Global Genes)
(This page will continually be updated, if you have a resource or genetic condition-specific guidance you would like us to review for addition to the list, send us your suggestions here)