Gene-In-A-Box

To see our Top 10 Genetic Resources: Click Here

What is contained in the Gene-In-A-Box resources?

• Gene/DNA Plush Figurine (link to purchase)
• MSRGN magnets: English and Spanish
• MSRGN brochures: English and Spanish
• Developmental Delay Algorithm and Genetics Resources:
  Approach to Genetics Diagnosis in Developmental Delay
  Approach to Genetic Diagnosis one page
  Non-genetic Causes of Developmental Delay and Diagnosis
  Laboratory Information-Genetics Labs that Perform Pre-Authorization
  Elements of Consent for Genetic Testing
  Laws Pertaining to Genetic Information
  Bullet point list of genetic discrimination laws
  Genetics Overview
  Description of Genetics Services (English & Spanish)
  Variants of Uncertain Significance (English & Spanish)
• Genetic Alliance Resources
  • Genetic Alliance Book 1- A Guide to Family Health History
  • Genetic Alliance Book 2- A Guide to Genetics and Health
  • Genetic Alliance Book 1: Spanish- Una guia para historial de salud familiar
  • Genetic Alliance Book 2: Spanish- Una guia para enternder la genetica y la salud

• NIH Curriculum:
  • Human Genetic Variation(pdf) grade 9-12
  • Human Genetic Variation (online)
  • Rare Disease and Scientific Inquiry(pdf) grade 6-8
  • Rare Disease and Scientific Inquiry (online)
• Scientific Magazines from NIH:
• Findings – Fall 2017
• Findings – September 2013
• Findings – September 2012 
• Genetics in Primary Care Institute Infographic*
• Genetic and Rare Disease Information Center (GARD) Hotline Number and Flyer
• Genetic and Rare Disease Information Center (GARD) Hotline Number and Flyer (Spanish)
• Sign-in cards
• Reimbursement sheet
• Gift cards (purchased by MSRGN)
• Self-address stamped envelope (addressed to THI) to return sign-in sheet and reimbursement form
• Guide-Questions Starters for Genetics Pop-up event

New Resources for 2020

• Tele-What? Infographic and Webinar
• Ken Burns Documentary: The Gene: An Intimate History: website / watch documentary
• National Geographic Special Edition: Your Genes: 100 Things You Never Knew
• DNA Kits: Instructions here, and to Purchase here
• CDC Learn the Signs, Act Early (many languages available)  to order or print click here
• What is a Geneticist? from AAP
• Infographic- Rare Disease ASHG
• Genetic Counseling Guide from Genetic Alliance English | Spanish
• 2020 Rare Disease Day Flyer 
• Rare Disease Day infographic NORD

*This resource is based on the learnings from the Genetics in Primary Care Institute (GPCI) Quality Improvement Project, a project supported by the Maternal and Child Heath Bureau and managed by the Practice Improvement Network, a network of the Quality Improvement Innovation Networks at the American Academy of Pediatrics (AAP). The GPCI was a three-year cooperative agreement between the AAP and the Health Resources and Services Administration Maternal and Child Health Bureau (federal award number UC7MC21713). The GPCI was established with an overarching vision to improve primary care provider knowledge and skills in providing genetics-based services. A major goal of this initiative is to increase understanding amongst the public and medical home providers regarding how genetics and family history influence the health of the individual.