MSRGN Launches Ehlers Danlos Syndrome (EDS) Algorithm For Primary Care

During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would like to thank Dr. Abe Elias from Shodair Hospital in Montana for his leadership on this project.

You can find this guide along with family resources, here:

What to do when you suspect Ehlers-Danlos Syndrome – a practical guide for Primary Care Clinicians

Please share this link to this guide and resources with your colleagues, friends, organizations through email, and social media channels.