News

December 2019 Project Director’s Message

Monthly, we will be posting our Project Director Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the December... Read More

2020 Genetics Pop-Up Recipients for Rare Disease Day Announced

The Genetics Pop-Ups are an opportunity for Genetic Ambassadors across our region to share information and resources about genetics with those in their community who may need it for a child or loved one with a possible genetic condition. In 2019, the program was launched with 5 genetic pop-ups across our region. In 2020 we... Read More

Arizona Team Developmental Delay Algorithm

The Arizona State team created a version of a developmental delay algorithm for genetic testing.  The team also created another tool: a laboratory document for pediatricians and primary care doctors, to aid in ordering these tests. Click here to read The Arizona Developmental Delay Algorithm.  Mountain States Regional Genetics Network (MSRGN) organized the development of... Read More

November 2019 Project Director’s Message

Monthly, we will be posting our Project Director Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the November... Read More

Genetics Pop-Up Application is OPEN for 2020

MSRGN has eight Genetics Pop-Ups available for 2020. We would ideally like to fund one in each state (TX, NM, AZ, NV, UT, CO, MT, WY) of our region. If you would like to apply to host one of these genetics pop-ups, please click here for the application, as it is now OPEN. The application... Read More

Texas DSHS Hosts Newborn Screening Grand Rounds: Spinal Muscular Atrophy (SMA)

Texas DSHS Newborn Screening Grand Rounds  Gene Therapy: A Landmark in Spinal Muscular Atrophy Treatment Newborn Screening Grand Rounds is a lecture series at TX DSHS. There is no cost to participate and continuing education credit is available for some professions. Participate in Grand Rounds by webinar or in-person in Austin. Wednesday, November 13, 2019,... Read More

Utah State Team Developmental Delay Algorithm

Mountain States Regional Genetics Network (MSRGN) organized the development of an algorithm to guide primary care clinicians in evaluating young children with a developmental delay with genetic and other types of testing. See Developmental Delay Algorithm & Resources (MSRGN) for the original algorithm and a number of related resources, including information about informed consent, patient... Read More

September/October 2019 Project Director’s Message

Monthly, we will be posting our Project Director Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the September/October... Read More

Virtual Education Series Newborn Screening: Colorado, Past Webinars

Three webinars have been completed in the Colorado Virtual Education Series covering newborn screening topics,  held in conjunction with Children’s Hospital Colorado and our MSRGN Colorado State Team. If you missed either of the first 2 webinars, please visit our archive page to watch the recordings of the past webinars. The 3rd webinar will be... Read More

Nevada ECHO on Genetics now Available

In June, our Nevada state team partnered with Nevada ECHO for their series on Genetics. The entire series YouTube Playlist archive can be found here. Two of the talks are highlighted here: Cancer as a Genetic Issue, Nathan Slotnick, MD, PhD, MA, MS- presented 6/12/19:  The archive of the presentation can be found here. Neonatal and... Read More