Red Flags for Genetics Survey Launched: for Families

Survey Title: MSRGN Red Flags Survey: For Families

Who Should Take This Survey: individuals or families impacted by genetic conditions

What is the survey about: The goal of the survey is to capture the experience of families and parents with the early signs and symptoms (Red Flags) their children may have experienced on their journey before obtaining a genetic diagnosis. This information will be utilized to create educational materials for other families and providers.

RED FLAGS  for GENETICS survey links:

English Red Flag Survey Link:

Spanish Red Flag Survey Link:

Date Launched: January 25, 2021

Proposed Survey Close Date: March 20, 2021

Categories: For Families