Time 4 Genetics: Newborn Screening

April 2023: Newborn Screening Newsletter (here)

May 2023: Newborn Screening Webinar (recording here)

June 2023: Newborn Screening Mailer  (HRSA/ ACHDNC NBS results communication guide here)

July 2023: Newborn Screening Family Centered Perspectives  (here)

Featuring Family perspectives featuring Tracy Keller (CO), Kala McWain (WY)

Links shared on Family Perspectives call: 

https://www.acmg.net/ACMG/Medical-Genetics-Practice-Resources/ACT_Sheets_and_Algorithms.aspx

https://www.mountainstatesgenetics.org/t4g-nbs-webinar-recording/

https://www.mitoaction.org/fatty-acid-oxidation-disorders/

https://www.npkua.org/

https://www.babysfirsttest.org/

https://www.today.com/parents/parents/metabolic-condition-pku-congress-bill-formula-food-rcna45021