News

Genetic Pop-Ups 2021 Honor Rare Disease Day

February 17, 2021 — In honor of Rare Disease Day, MSRGN and their Genetic Ambassadors are hosting 8 Genetic Pop-Ups across the 8 state region. There will be 3 pop-ups that are open for public registration hosted by Jamie, Emma and Hannah. Please pick the best time and date to fit your schedule, register,  and join us! Jamie: 2/26/21... Read More

Genetics Navigator Application Launched

January 31, 2021 — During our Virtual Winter Meeting, MSRGN announced the launch of its newest initiative: Genetic Navigator Program and subsequently the launch of the application for this program. The MSRGN Genetic Navigator Program is an initiative to help families navigate the genetic services system in their state of residence. In March of 2021, 8 genetic navigators will... Read More

COVID19 State Specific Resources for Families

April 30, 2020 — In collaboration with our state teams, MSRGN developed these state-specific emergency preparedness resource sheets for COVID-19 and families impacted by genetic conditions. Click below on the state name to access the sheet for the 8 states in our region: Arizona Colorado Montana Nevada New Mexico Texas Utah Wyoming Also, check out this page with additional... Read More

COVID 19 Resources for Individuals and Families with Genetic Conditions

April 1, 2020 — During this time of the COVID 19 (coronavirus) pandemic, here are some resources that may be helpful to individuals and families impacted by genetic conditions. If you have any medical questions during this time, please consult you or your loved one’s primary care physician. For the most up to date public health information please check... Read More

2020 Genetics Pop-Up Recipients for Rare Disease Day Announced

December 19, 2019 — The Genetics Pop-Ups are an opportunity for Genetic Ambassadors across our region to share information and resources about genetics with those in their community who may need it for a child or loved one with a possible genetic condition. In 2019, the program was launched with 5 genetic pop-ups across our region. In 2020 we... Read More

Genetics Pop-Up Application is OPEN for 2020

November 9, 2019 — MSRGN has eight Genetics Pop-Ups available for 2020. We would ideally like to fund one in each state (TX, NM, AZ, NV, UT, CO, MT, WY) of our region. If you would like to apply to host one of these genetics pop-ups, please click here for the application, as it is now OPEN. The application... Read More