News

MSRGN Launches Red Flags 4 Genetics Handout for Families and Providers

June 28, 2021 — The MSRGN’s Genetic Ambassador group designed a survey for families which was shared in January 2021 and collected responses until March of 2021. This survey asked families (whose child went on to get a genetic diagnosis) about the “red flags” or symptoms, warning signs, or details that concerned them as parents. The responses of 114... Read More

Inaugural Time 4 Genetics Webinar~ Red Flags 4 Genetics: May 18th

April 21, 2021 — MSRGN is inviting you to our inaugural Time 4 Genetics Webinar: Red Flags 4 Genetics May 18, 2021 (at 10am PT, 11am MT, noon CT, and 1pm ET)  featuring Guest Presenters: Carrie Schmid, MD, FAAP a pediatrician and geneticist and Alexandra Grace, CPNP-PC a nurse practitioner, both from The Children’s Hospital of San Antonio Genetics Department.... Read More

Red Flags for Genetics Survey Launched: for Families

January 25, 2021 — Survey Title: MSRGN Red Flags Survey: For Families Who Should Take This Survey: individuals or families impacted by genetic conditions What is the survey about: The goal of the survey is to capture the experience of families and parents with the early signs and symptoms (Red Flags) their children may have experienced on their journey... Read More