MSRGN Newborn Screening Family Listening Sessions Final Report

May 9, 2024 — Background Information In August of 2023, HRSA reached out to Mountain States Regional Genetics Network (MSRGN) for assistance with a family outcome newborn screening project. Supplemental funding was provided to MSRGN and each Regional Genetics Network (7) to support engagement of family leaders, especially those from underserved populations. The goal was to provide meaningful input... Read More

Positive Newborn Screen Family Outcomes Listening Session

February 8, 2024 — MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

MSRGN honors Newborn Screening Awareness Month #2021NBS

September 1, 2021 — September is Newborn Screening Awareness Month! MSRGN has a long tradition of supporting, promoting and encouraging newborn screening professionals, education and awareness in our 8-state region. Check out these resources and upcoming events/resources that honor Newborn Screening Month! (click on words underlined for more info about the event): #2021NBS Toolkit from Expecting Health 2021 NBSTRN... Read More

Texas DSHS Hosts Newborn Screening Grand Rounds: Spinal Muscular Atrophy (SMA)

November 7, 2019 — Texas DSHS Newborn Screening Grand Rounds  Gene Therapy: A Landmark in Spinal Muscular Atrophy Treatment Newborn Screening Grand Rounds is a lecture series at TX DSHS. There is no cost to participate and continuing education credit is available for some professions. Participate in Grand Rounds by webinar or in-person in Austin. Wednesday, November 13, 2019,... Read More

Virtual Education Series Newborn Screening: Colorado, Past Webinars

October 15, 2019 — Three webinars have been completed in the Colorado Virtual Education Series covering newborn screening topics,  held in conjunction with Children’s Hospital Colorado and our MSRGN Colorado State Team. If you missed either of the first 2 webinars, please visit our archive page to watch the recordings of the past webinars. The 3rd webinar will be... Read More

Monthly Newborn Screening Virtual Education Series Launching in August

July 29, 2019 — In conjunction with members of our Colorado State team, CHILDREN’S HOSPITAL COLORADO PRESENTS… Newborn Screening Virtual Education Series Every 2nd Tuesday of the Month • 12 to 1 p.m. Via Teleconference (Vidyo Link and Instructions sent upon registration) Overview, Target Audience, and Learner Outcome: This activity, designed for the primary care providers and interdisciplinary healthcare... Read More