News

Genetic Navigator Training 2.0

In 2021, MSRGN implemented a Genetic Navigator (1.0) outreach initiative in all 8 of our states. Over the last 3 years this program has facilitate over 250 family connections in our region. We have now developed a new Genetic Navigator training specifically for inside the genetics clinic or an “in-reach” (vs. outreach) program and we... Read More

February 2024 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the February 2024 PD... Read More

Genetic Connections Workshop: Nevada

Calling all early intervention professionals in Nevada*! Please join us on March 1 and March 8 3pm ET/2pm CT/1pm MT/ noon PT as our Nevada Genetic Navigator, Mariah, facilitates the Genetic Connections Workshop. The workshop will be two sessions which will be one hour each. Download Flyer here Please Register here *If you are not... Read More

Positive Newborn Screen Family Outcomes Listening Session

MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

January 2024 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the January 2024 PD... Read More

Genetic Pop-Ups in January and February

Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here  

December 2023 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the December... Read More

Time 4 Genetics Webinar~ Variants of Uncertain Significance: January 29, 2024

MSRGN is inviting you to our  Time 4 Genetics Webinar: Are all Variants of Uncertain Significance Created Equal? A Rough Guide January 29, 2024 (at 11am PT, noon MT, 1pm CT, and 2pm ET)   featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital and... Read More

November 2023 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the November... Read More