News

National Broadband Resources and April Webinars

The Federal Communications Commission (FCC) launched a new Emergency Broadband Benefit resource in April 2021.   The tool allows partners and consumers to view by state or territory the providers that will be participating in the Emergency Broadband Benefit program. Each listing includes the type of service offered, whether it’s “fixed” or “mobile”, and whether the provider... Read More

March 2021 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the March... Read More

National Survey of Children’s Health & Data Resource Center

HRSA(DSCSHN) would like to bring awareness to an existing data resource, which provides access to child- and family-level estimates from the National Survey of Children’s Health (NSCH). The Data Resource Center (DRC), which is a project of the Child and Adolescent Health Measurement Initiative (CAHMI) out of Johns Hopkins University, is funded by HRSA/MCHB under... Read More

MSRGN Genetic Navigators Announced!

We are thrilled to announce the first team of Genetic Navigators for the MSRGN’s 8-state region. Please join us in congratulating: Arizona ~ Noan Dublinski Colorado ~ Jamie Stefanski Montana ~ Jennifer Banna Nevada ~ Hannah Barnhart New Mexico ~ Jennifer Bartz Texas ~ Lourdes Torres Utah ~ Tristin West Wyoming ~ Melody Rupple   The 8 navigators will begin training in March-... Read More

February 2021 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the February... Read More

Genetic Pop-Ups 2021 Honor Rare Disease Day

In honor of Rare Disease Day, MSRGN and their Genetic Ambassadors are hosting 8 Genetic Pop-Ups across the 8 state region. There will be 3 pop-ups that are open for public registration hosted by Jamie, Emma and Hannah. Please pick the best time and date to fit your schedule, register,  and join us! Jamie: 2/26/21... Read More

January 2021 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the January... Read More

Genetics Navigator Application Launched

During our Virtual Winter Meeting, MSRGN announced the launch of its newest initiative: Genetic Navigator Program and subsequently the launch of the application for this program. The MSRGN Genetic Navigator Program is an initiative to help families navigate the genetic services system in their state of residence. In March of 2021, 8 genetic navigators will... Read More

Red Flags for Genetics Survey Launched: for Families

Survey Title: MSRGN Red Flags Survey: For Families Who Should Take This Survey: individuals or families impacted by genetic conditions What is the survey about: The goal of the survey is to capture the experience of families and parents with the early signs and symptoms (Red Flags) their children may have experienced on their journey... Read More

Explainer Video Survey Launched: for Providers

Survey Title: MSRGN Genetics Explainer Video Idea Survey Who Should Take This Survey: Geneticists, Genetic Providers, Genetic Counselors, Non-Genetic Specialists, Primary Care Physicians, Pediatricians, Nurses, Nurse Practitioners, Anyone who talks about genetic terminology with a family in our region. What is an Explainer Video:  an animated video that describes a genetic word or concept in easy-to-understand... Read More