News

February 2021 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the February... Read More

Genetic Pop-Ups 2021 Honor Rare Disease Day

In honor of Rare Disease Day, MSRGN and their Genetic Ambassadors are hosting 8 Genetic Pop-Ups across the 8 state region. There will be 3 pop-ups that are open for public registration hosted by Jamie, Emma and Hannah. Please pick the best time and date to fit your schedule, register,  and join us! Jamie: 2/26/21... Read More

January 2021 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the January... Read More

Genetics Navigator Application Launched

During our Virtual Winter Meeting, MSRGN announced the launch of its newest initiative: Genetic Navigator Program and subsequently the launch of the application for this program. The MSRGN Genetic Navigator Program is an initiative to help families navigate the genetic services system in their state of residence. In March of 2021, 8 genetic navigators will... Read More

Red Flags for Genetics Survey Launched: for Families

Survey Title: MSRGN Red Flags Survey: For Families Who Should Take This Survey: individuals or families impacted by genetic conditions What is the survey about: The goal of the survey is to capture the experience of families and parents with the early signs and symptoms (Red Flags) their children may have experienced on their journey... Read More

Explainer Video Survey Launched: for Providers

Survey Title: MSRGN Genetics Explainer Video Idea Survey Who Should Take This Survey: Geneticists, Genetic Providers, Genetic Counselors, Non-Genetic Specialists, Primary Care Physicians, Pediatricians, Nurses, Nurse Practitioners, Anyone who talks about genetic terminology with a family in our region. What is an Explainer Video:  an animated video that describes a genetic word or concept in easy-to-understand... Read More

Telehealth 101 Telehealth for Tribes: HRSA Archive

This Telehealth 101 Virtual Workshop was hosted by the Health Resources and Services Administration (HRSA) Office of Regional Operations (ORO), in collaboration with the North Dakota Department of Health and Spirit Lake Tribe of North Dakota held November 18-19, 2020. The archive of the materials and recording of the presentations can be found linked below:... Read More

December 2020 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the December... Read More

MSRGN’s Holiday Genetics Gift List 2020

What a year 2020 has been! In an effort to spread some joy and cheer as we end the year, and maybe give you a little chuckle, please check out our GENETICS Themed gift guide for those special people in your life: DNA Artwork by ZuniArtist Children’s Book: I Love Genetics DNA Coffee Mug Fuzzy... Read More

Genetics Pop-Up Application deadline EXTENDED to January 4, 2021

MSRGN  launched the 2021 Genetics Pop-Up application a few weeks ago! Are you wondering what a Genetic Pop-Up is?  Read more about genetic pop-ups here. The application is now open for genetic ambassadors and individuals in our region to apply to host a virtual Genetic Pop-Up for Rare Disease Day in February of 2021. The deadline for the... Read More