News

April/May 2024 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the April/May 2024 PD... Read More

Frequently Asked Questions for MSRGN Resources after 5/31/24

Please use this infographic as guidance for any frequently asked questions that arise about the use, distribution, and modifications to MSRGN materials and resources after the grant sunsets on 5/31/24. The website and resources will be available from 6/1/24 through 5/31/26.   FAQs about MSRGN Resources beyond 5/31/24      

MSRGN Newborn Screening Family Listening Sessions Final Report

Background Information In August of 2023, HRSA reached out to Mountain States Regional Genetics Network (MSRGN) for assistance with a family outcome newborn screening project. Supplemental funding was provided to MSRGN and each Regional Genetics Network (7) to support engagement of family leaders, especially those from underserved populations. The goal was to provide meaningful input... Read More

March 2024 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the March 2024 PD... Read More

Genetic Navigator Training 2.0

In 2021, MSRGN implemented a Genetic Navigator (1.0) outreach initiative in all 8 of our states. Over the last 3 years this program has facilitate over 250 family connections in our region. We have now developed a new Genetic Navigator training specifically for inside the genetics clinic or an “in-reach” (vs. outreach) program and we... Read More

February 2024 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the February 2024 PD... Read More

Genetic Connections Workshop: Nevada

Calling all early intervention professionals in Nevada*! Please join us on March 1 and March 8 3pm ET/2pm CT/1pm MT/ noon PT as our Nevada Genetic Navigator, Mariah, facilitates the Genetic Connections Workshop. The workshop will be two sessions which will be one hour each. Download Flyer here Please Register here *If you are not... Read More

Positive Newborn Screen Family Outcomes Listening Session

MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

January 2024 Project Directors’ Message

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the January 2024 PD... Read More