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August 3, 2020 —
During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More
July 30, 2020 —
Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the July... Read More
May 22, 2020 —
The National Coordinating Center for the Regional Genetics Network (NCC) is sponsoring the first-ever Public Health Genetics Week from May 26-29, 2020. The goal of Public Health Genetics Week is to both increase awareness about, and to celebrate the efforts of professionals in, public health genetics. As part of this awareness campaign, our Nevada State Team... Read More
April 30, 2020 —
In collaboration with our state teams, MSRGN developed these state-specific emergency preparedness resource sheets for COVID-19 and families impacted by genetic conditions. Click below on the state name to access the sheet for the 8 states in our region: Arizona Colorado Montana Nevada New Mexico Texas Utah Wyoming Also, check out this page with additional... Read More
April 1, 2020 —
During this time of the COVID 19 (coronavirus) pandemic, here are some resources that may be helpful to individuals and families impacted by genetic conditions. If you have any medical questions during this time, please consult you or your loved one’s primary care physician. For the most up to date public health information please check... Read More
January 27, 2020 —
Our Texas state team will be using some of their state team funds to help defray the cost of food and childcare at this upcoming Genetics Conference and Resource Fair in El Paso, Texas on February 22, 2020. Please Register if attending, by February 18th via phone 713-798-6522 or email: mir at bcm dot... Read More
January 20, 2020 —
Please join us in honoring #RareDiseaseDay2020 in the Mountain States region with these Genetics Pop-ups happening in all of our 8 states! Please contact us if you would like more information about any of the Genetics Pop-Ups below and stay tuned to our Facebook and Twitter sites on more details for the events that are... Read More
December 19, 2019 —
The Genetics Pop-Ups are an opportunity for Genetic Ambassadors across our region to share information and resources about genetics with those in their community who may need it for a child or loved one with a possible genetic condition. In 2019, the program was launched with 5 genetic pop-ups across our region. In 2020 we... Read More
November 9, 2019 —
MSRGN has eight Genetics Pop-Ups available for 2020. We would ideally like to fund one in each state (TX, NM, AZ, NV, UT, CO, MT, WY) of our region. If you would like to apply to host one of these genetics pop-ups, please click here for the application, as it is now OPEN. The application... Read More
November 5, 2019 —
Mountain States Regional Genetics Network (MSRGN) organized the development of an algorithm to guide primary care clinicians in evaluating young children with a developmental delay with genetic and other types of testing. See Developmental Delay Algorithm & Resources (MSRGN) for the original algorithm and a number of related resources, including information about informed consent, patient... Read More
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