2020 Genetics Pop-Up Recipients for Rare Disease Day Announced

December 19, 2019 — The Genetics Pop-Ups are an opportunity for Genetic Ambassadors across our region to share information and resources about genetics with those in their community who may need it for a child or loved one with a possible genetic condition. In 2019, the program was launched with 5 genetic pop-ups across our region. In 2020 we... Read More

Genetics Pop-Up Application is OPEN for 2020

November 9, 2019 — MSRGN has eight Genetics Pop-Ups available for 2020. We would ideally like to fund one in each state (TX, NM, AZ, NV, UT, CO, MT, WY) of our region. If you would like to apply to host one of these genetics pop-ups, please click here for the application, as it is now OPEN. The application... Read More

Utah State Team Developmental Delay Algorithm

November 5, 2019 — Mountain States Regional Genetics Network (MSRGN) organized the development of an algorithm to guide primary care clinicians in evaluating young children with a developmental delay with genetic and other types of testing. See Developmental Delay Algorithm & Resources (MSRGN) for the original algorithm and a number of related resources, including information about informed consent, patient... Read More

MSRGN Celebrates Newborn Screening Month

September 16, 2019 — September is Newborn Screening Month (NBS). In celebration of the life-saving screening done across our region and in the United States, we have a learning session at our upcoming 2019 Genetics Summit, dedicated to NBS. We invite you to join us in Albuquerque, New Mexico on September 23-25 to learn more about the advances in... Read More

Registration for the 2019 Genetics Summit- Now Open

July 30, 2019 — To read more about the upcoming Genetics Summit Announcement click here. Please feel free to share the PDF  link:  to the 2019 Genetics Summit announcement with your friends, colleagues and social media outlets. All the details about the 2019 Genetics Summit can be found here.

Consumer Scholarship Application- Genetics Summit 2019

June 26, 2019 —   Consumer Scholarships for the 2019 Genetics Summit We have developed a scholarship program for our consumers to assist them in traveling to the 2019 Genetics Summit on September 23-25th in Albuquerque, NM. The scholarship will cover registration fees, air travel (or mileage based on location), hotel and daily per diem for meals. Scholarship recipients will be... Read More

Genetic service delivery in primary care settings ECHO – Heartland

February 11, 2019 — Our colleagues at Heartland Regional Genetics Network are partnering with Missouri Telehealth Network and Show-Me-ECHO, to provide a series on genetic service delivery in primary care settings. Click here for a flyer with more information on the ECHO sessions listed below. Registration for these sessions can be found here. TOPICS FOR CASE-BASED LEARNING AND DISCUSSION INCLUDE: February 14, 2019,... Read More

IHS Clinical Rounds Archive: Working with Families to Obtain Genetic Testing

December 5, 2018 — MSRGN was pleased to partner with IHS (Indian Health Services) for their IHS Clinical Rounds on December 5, 2018, which featured: Celia I. Kaye, MD, PhD, and Trish Thomas speaking about: IHS Clinical Rounds Working with Families to Obtain Genetic Testing The archive and replay of the presentation can be found here. If you have any difficulty accessing... Read More

IHS Clinical Rounds: Working with Families to Obtain Genetic Testing

November 27, 2018 — Please save the date and register today for the: IHS Clinical Rounds: Working with Families to Obtain Genetic Testing This one hour webinar will be presented by: Celia I. Kaye, MD, PhD  and  Patricia (Trish) Thomas Tuesday, December 4, 2018  3:00 pm – 4:00 pm Eastern 2:00 pm –3:00 pm Central 1:00 pm – 2:00 pm Mountain... Read More