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February 17, 2021 —
In honor of Rare Disease Day, MSRGN and their Genetic Ambassadors are hosting 8 Genetic Pop-Ups across the 8 state region. There will be 3 pop-ups that are open for public registration hosted by Jamie, Emma and Hannah. Please pick the best time and date to fit your schedule, register, and join us! Jamie: 2/26/21... Read More
January 31, 2021 —
During our Virtual Winter Meeting, MSRGN announced the launch of its newest initiative: Genetic Navigator Program and subsequently the launch of the application for this program. The MSRGN Genetic Navigator Program is an initiative to help families navigate the genetic services system in their state of residence. In March of 2021, 8 genetic navigators will... Read More
January 25, 2021 —
Survey Title: MSRGN Red Flags Survey: For Families Who Should Take This Survey: individuals or families impacted by genetic conditions What is the survey about: The goal of the survey is to capture the experience of families and parents with the early signs and symptoms (Red Flags) their children may have experienced on their journey... Read More
January 25, 2021 —
This Telehealth 101 Virtual Workshop was hosted by the Health Resources and Services Administration (HRSA) Office of Regional Operations (ORO), in collaboration with the North Dakota Department of Health and Spirit Lake Tribe of North Dakota held November 18-19, 2020. The archive of the materials and recording of the presentations can be found linked below:... Read More
December 17, 2020 —
What a year 2020 has been! In an effort to spread some joy and cheer as we end the year, and maybe give you a little chuckle, please check out our GENETICS Themed gift guide for those special people in your life: DNA Artwork by ZuniArtist Children’s Book: I Love Genetics DNA Coffee Mug Fuzzy... Read More
December 16, 2020 —
MSRGN launched the 2021 Genetics Pop-Up application a few weeks ago! Are you wondering what a Genetic Pop-Up is? Read more about genetic pop-ups here. The application is now open for genetic ambassadors and individuals in our region to apply to host a virtual Genetic Pop-Up for Rare Disease Day in February of 2021. The deadline for the... Read More
December 9, 2020 —
MSRGN has launched the 2021 Genetics Pop-Up application. Are you wondering what a Genetic Pop-Up is? Read more about genetic pop-ups here. The application is now open for genetic ambassadors and individuals in our region to apply to host a virtual Genetic Pop-Up for Rare Disease Day in February of 2021. The deadline for the... Read More
October 22, 2020 —
The Colorado Virtual Education Series held in conjunction with the Children’s Hospital of Colorado and the MSRGN Colorado State Team will be holding their next Genetic Tuesday on the topic of: Ehlers-Danlos Syndromes – more than just skin and joints Their next session will take place on November 10, 2020 at noon- 1pm MT. To... Read More
October 7, 2020 —
In honor of National Hispanic Heritage Month (September 15 – October 15), MSRGN has compiled a list of genetic resources from our region and our sister regional genetics networks in SPANISH (en español). Click here to access this Spanish en español Genetics resource page.
August 3, 2020 —
During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More
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