May 9, 2024 —
Background Information In August of 2023, HRSA reached out to Mountain States Regional Genetics Network (MSRGN) for assistance with a family outcome newborn screening project. Supplemental funding was provided to MSRGN and each Regional Genetics Network (7) to support engagement of family leaders, especially those from underserved populations. The goal was to provide meaningful input... Read More
March 4, 2024 —
In 2021, MSRGN implemented a Genetic Navigator (1.0) outreach initiative in all 8 of our states. Over the last 3 years this program has facilitate over 250 family connections in our region. We have now developed a new Genetic Navigator training specifically for inside the genetics clinic or an “in-reach” (vs. outreach) program and we... Read More
February 8, 2024 —
As many have heard by now, the MSRGN grant will be ending on 5/31/24 and will not be renewed. The regional genetics networks and Mountain States Genetics have had a presence in this region for the last 40 plus years. We invite all who have been a part of this era to join us in... Read More
February 8, 2024 —
MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More
January 14, 2024 —
Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024: (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here
December 13, 2023 —
MSRGN is inviting you to our Time 4 Genetics Webinar: Are all Variants of Uncertain Significance Created Equal? A Rough Guide January 29, 2024 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital and... Read More
October 30, 2023 —
Please join us for 2 Genetics Pop-Ups coming up in December 2023 and February 2024 in our Navigating to Hope Genetics Pop-Up series. Registration and a flyer can be found linked below: December 6, 2023: Hope through Understanding Register Here February 22, 2024: (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here
July 31, 2023 —
MSRGN is inviting you to our Time 4 Genetics Webinar: The Genetics of Pediatric Seizures and Epilepsy September 26, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Amanda G. Sandoval Karamian, MD Assistant Professor of Pediatric Neurology & Epilepsy University of Utah Primary Children’s Hospital To register please click: here For a clickable... Read More
July 18, 2023 —
Mountain States Regional Genetics Network (MSRGN) in collaboration with The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is pleased to share 2 new infographic resources that continue on the Genetic Recipe Infographics Series. The 2 new cake infographics include: De novo: this infographic presents an analogy that helps in the understanding of a de... Read More
May 19, 2023 —
2023 Montana Genetics Conference: Wide Open Spaces Friday, June 17, 2023 & Saturday, June 18, 2023 Provider agenda Family day agenda Register Here You are invited to attend Wide Open Spaces, a free symposium in Helena at the Great Northern on June 16/17. If you are interested in discussing local and regional care coordination at... Read More
Prior to 6/1/24 this website was maintained by MSRGN through a cooperative agreement funded by HRSA. Funding for this project ended on 5/31/24. Website content will be available until 5/31/26, however no updates are being made. This website was last updated on 5/31/24.
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