News

Positive Newborn Screen Family Outcomes Listening Session

February 8, 2024 — MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

Genetic Pop-Ups in January and February

January 14, 2024 — Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here  

Time 4 Genetics Webinar~ Variants of Uncertain Significance: January 29, 2024

December 13, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: Are all Variants of Uncertain Significance Created Equal? A Rough Guide January 29, 2024 (at 11am PT, noon MT, 1pm CT, and 2pm ET)   featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital and... Read More

Genetics Pop-Ups in December and February

October 30, 2023 — Please join us for 2 Genetics Pop-Ups coming up in December 2023 and February 2024 in our Navigating to Hope Genetics Pop-Up series. Registration and a flyer can be found linked below: December 6, 2023: Hope through Understanding  Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here

Time 4 Genetics Webinar~ Seizures and Genetics: Sept. 26, 2023

July 31, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: The Genetics of Pediatric Seizures and Epilepsy September 26, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Amanda G. Sandoval Karamian, MD Assistant Professor of Pediatric Neurology & Epilepsy University of Utah  Primary Children’s Hospital To register please click: here For a clickable... Read More

MSRGN and NYMAC Launch 2 more Genetic Recipe Infographics: VUS and DeNovo

July 18, 2023 — Mountain States Regional Genetics Network (MSRGN) in collaboration with The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is pleased to share 2 new infographic resources that continue on the Genetic Recipe Infographics Series. The 2 new cake infographics include: De novo: this infographic presents an analogy that helps in the understanding of a de... Read More

Montana Genetics Conference ~ June 16-17th

May 19, 2023 — 2023 Montana Genetics Conference: Wide Open Spaces Friday, June 17, 2023 & Saturday, June 18, 2023 Provider agenda Family day agenda Register Here You are invited to attend Wide Open Spaces, a free symposium in Helena at the Great Northern on June 16/17. If you are interested in discussing local and regional care coordination at... Read More

Application OPEN for Genetic Navigator Role in Nevada and Utah

April 17, 2023 — The MSRGN Genetic Navigator Program is seeking an individual or family member who has navigated genetics for themselves or their loved ones in Nevada and Utah. In the Genetic Navigator role, the individual chosen for the role, will assist other families in Nevada or Utah with accessing and navigating the genetic services system. This position... Read More

Time 4 Genetics Webinar~ Newborn Screening: May 16, 2023

March 30, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: 60 Years of Newborn Screening in a Nutshell May 16, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Guest Presenter: Dietrich Matern, M.D., PH.D. Clinical Biochemical Geneticist Director, Biochemical Genetics Lab, Mayo Clinic To register please click: here For a clickable and ready... Read More