News

IHS Clinical Rounds Archive: Working with Families to Obtain Genetic Testing

December 5, 2018 — MSRGN was pleased to partner with IHS (Indian Health Services) for their IHS Clinical Rounds on December 5, 2018, which featured: Celia I. Kaye, MD, PhD, and Trish Thomas speaking about: IHS Clinical Rounds Working with Families to Obtain Genetic Testing The archive and replay of the presentation can be found here. If you have any difficulty accessing... Read More

IHS Clinical Rounds: Working with Families to Obtain Genetic Testing

November 27, 2018 — Please save the date and register today for the: IHS Clinical Rounds: Working with Families to Obtain Genetic Testing This one hour webinar will be presented by: Celia I. Kaye, MD, PhD  and  Patricia (Trish) Thomas Tuesday, December 4, 2018  3:00 pm – 4:00 pm Eastern 2:00 pm –3:00 pm Central 1:00 pm – 2:00 pm Mountain... Read More

IHS Clinical Rounds Archive: Nutritional Management of Genetic Disorders

October 5, 2018 — MSRGN was pleased to partner with IHS (Indian Health Services) for their IHS Clinical Rounds on September 27, 2018, which featured: Melissa Sailer, MS, RD, CNSC  speaking about: Nutritional Management of Genetic Disorders  The archive and replay of the presentation can be found here. If you have any difficulty accessing the replay, please contact us here.    

What do you want to learn about Genetics? Family Survey

September 26, 2018 —   We have launched this survey to learn what consumers, family members, advocates and patients would like to learn about GENETICS on social media. Please share your thoughts and feedback by taking a few short minutes to answer these 5 questions. Please feel free to share this with your friends, family, support groups and community,... Read More

2018 Consumer Scholarship Application for Genetics Summit

May 29, 2018 — This scholarship is to assist consumers in traveling to the Genetics Summit and will include coverage for registration fees, air travel or mileage based on location, hotel and daily per diem for meals.  Scholarships will be awarded based on availability of funds and will be reviewed by the MSRGN management team.  Scholarship recipients will be... Read More

Family Voices Consumer Advocacy Training Opportunity

October 19, 2017 — MSRGN would like to announce upcoming training opportunities through our partner, Family Voices. MSRGN is pleased to be able to offer funding for attendance of up to 3 consumer advocates from the MSRGN region. More information can be found on the Family Voices Press Release which can be accessed online at this link. If interested... Read More