News

Genetic Navigator Training 2.0

March 4, 2024 — In 2021, MSRGN implemented a Genetic Navigator (1.0) outreach initiative in all 8 of our states. Over the last 3 years this program has facilitate over 250 family connections in our region. We have now developed a new Genetic Navigator training specifically for inside the genetics clinic or an “in-reach” (vs. outreach) program and we... Read More

Positive Newborn Screen Family Outcomes Listening Session

February 8, 2024 — MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

Genetic Pop-Ups in January and February

January 14, 2024 — Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here  

Time 4 Genetics Webinar~ Variants of Uncertain Significance: January 29, 2024

December 13, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: Are all Variants of Uncertain Significance Created Equal? A Rough Guide January 29, 2024 (at 11am PT, noon MT, 1pm CT, and 2pm ET)   featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital and... Read More

Genetics Pop-Ups in December and February

October 30, 2023 — Please join us for 2 Genetics Pop-Ups coming up in December 2023 and February 2024 in our Navigating to Hope Genetics Pop-Up series. Registration and a flyer can be found linked below: December 6, 2023: Hope through Understanding  Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here

Time 4 Genetics Webinar~ Seizures and Genetics: Sept. 26, 2023

July 31, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: The Genetics of Pediatric Seizures and Epilepsy September 26, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Amanda G. Sandoval Karamian, MD Assistant Professor of Pediatric Neurology & Epilepsy University of Utah  Primary Children’s Hospital To register please click: here For a clickable... Read More

MSRGN and NYMAC Launch 2 more Genetic Recipe Infographics: VUS and DeNovo

July 18, 2023 — Mountain States Regional Genetics Network (MSRGN) in collaboration with The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is pleased to share 2 new infographic resources that continue on the Genetic Recipe Infographics Series. The 2 new cake infographics include: De novo: this infographic presents an analogy that helps in the understanding of a de... Read More

Montana Genetics Conference ~ June 16-17th

May 19, 2023 — 2023 Montana Genetics Conference: Wide Open Spaces Friday, June 17, 2023 & Saturday, June 18, 2023 Provider agenda Family day agenda Register Here You are invited to attend Wide Open Spaces, a free symposium in Helena at the Great Northern on June 16/17. If you are interested in discussing local and regional care coordination at... Read More

Time 4 Genetics Webinar~ Newborn Screening: May 16, 2023

March 30, 2023 — MSRGN is inviting you to our  Time 4 Genetics Webinar: 60 Years of Newborn Screening in a Nutshell May 16, 2023 (at 11am PT, noon MT, 1pm CT, and 2pm ET) featuring Guest Presenter: Guest Presenter: Dietrich Matern, M.D., PH.D. Clinical Biochemical Geneticist Director, Biochemical Genetics Lab, Mayo Clinic To register please click: here For a clickable and ready... Read More