May 13, 2024 —
Please use this infographic as guidance for any frequently asked questions that arise about the use, distribution, and modifications to MSRGN materials and resources after the grant sunsets on 5/31/24. The website and resources will be available from 6/1/24 through 5/31/26. FAQs about MSRGN Resources beyond 5/31/24
March 4, 2024 —
In 2021, MSRGN implemented a Genetic Navigator (1.0) outreach initiative in all 8 of our states. Over the last 3 years this program has facilitate over 250 family connections in our region. We have now developed a new Genetic Navigator training specifically for inside the genetics clinic or an “in-reach” (vs. outreach) program and we... Read More
February 16, 2024 —
Calling all early intervention professionals in Nevada*! Please join us on March 1 and March 8 3pm ET/2pm CT/1pm MT/ noon PT as our Nevada Genetic Navigator, Mariah, facilitates the Genetic Connections Workshop. The workshop will be two sessions which will be one hour each. Download Flyer here Please Register here *If you are not... Read More
February 8, 2024 —
As many have heard by now, the MSRGN grant will be ending on 5/31/24 and will not be renewed. The regional genetics networks and Mountain States Genetics have had a presence in this region for the last 40 plus years. We invite all who have been a part of this era to join us in... Read More
February 8, 2024 —
MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More
January 14, 2024 —
Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024: (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here
June 29, 2023 —
Texas Health Institute is seeking a projects coordinator to provide administrative support for the Mountain States Regional Genetics Network project. The projects coordinator must have strong business acumen and organizational skills, website management skills, excellent verbal and written communication skills, and social media experience is helpful. Job Description can be found here. Employment Application can be... Read More
April 17, 2023 —
The MSRGN Genetic Navigator Program is seeking an individual or family member who has navigated genetics for themselves or their loved ones in Nevada and Utah. In the Genetic Navigator role, the individual chosen for the role, will assist other families in Nevada or Utah with accessing and navigating the genetic services system. This position... Read More
March 24, 2023 —
At the March 2023 American College of Genetics and Genomics Meeting in Salt Lake City, Utah, Janet Thomas, MD presented a poster on behalf of the MSRGN team entitled: Implementation of an Innovative, State-based Approach to Improving Access to Genetic Services The poster can be viewed online here. Or downloaded as a PDF here.
February 27, 2023 —
Texas Health Institute is seeking a projects coordinator to provide administrative support for the Mountain States Regional Genetics Network project. The projects coordinator must have strong business acumen and organizational skills, website management skills, excellent verbal and written communication skills, and social media experience is helpful. Job Description can be found here. Employment Application can be... Read More
Prior to 6/1/24 this website was maintained by MSRGN through a cooperative agreement funded by HRSA. Funding for this project ended on 5/31/24. Website content will be available until 5/31/26, however no updates are being made. This website was last updated on 5/31/24.
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