MSRGN Genetic Navigators Announced!

March 8, 2021 — We are thrilled to announce the first team of Genetic Navigators for the MSRGN’s 8-state region. Please join us in congratulating: Arizona ~ Noan Dublinski Colorado ~ Jamie Stefanski Montana ~ Jennifer Banna Nevada ~ Hannah Barnhart New Mexico ~ Jennifer Bartz Texas ~ Lourdes Torres Utah ~ Tristin West Wyoming ~ Melody Rupple   The 8 navigators will begin training in March-... Read More

MSRGN Launches Ehlers Danlos Syndrome (EDS) Algorithm For Primary Care

August 3, 2020 — During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More

2020 Genetics Pop-Up Dates in the Mountain States Region

January 20, 2020 — Please join us in honoring #RareDiseaseDay2020 in the Mountain States region with these Genetics Pop-ups happening in all of our 8 states! Please contact us if you would like more information about any of the Genetics Pop-Ups below and stay tuned to our Facebook and Twitter sites on more details for the events that are... Read More

Registration for the 2019 Genetics Summit- Now Open

July 30, 2019 — To read more about the upcoming Genetics Summit Announcement click here. Please feel free to share the PDF  link:  to the 2019 Genetics Summit announcement with your friends, colleagues and social media outlets. All the details about the 2019 Genetics Summit can be found here.

2018 MSRGN Genetics Summit Registration Now OPEN!

July 23, 2018 — We are excited to announce that registration is OPEN! We would love your help in spreading the word about the Genetics Summit. We are requesting that you share the below/attached with your networks via list serves, social media, etc. Thank you for your continued support and participation in the inaugural MSRGN Genetics Summit. We look... Read More

Happy DNA Day 2018

April 25, 2018 —   Today, April 25, 2018 is officially designated as DNA Day! Per the National Human Genome Research Institute (NHGRI) the history of DNA Day includes: “National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of DNA’s double helix in 1953. NHGRI began celebrating DNA Day annually on... Read More

Family Voices Consumer Advocacy Training Opportunity

October 19, 2017 — MSRGN would like to announce upcoming training opportunities through our partner, Family Voices. MSRGN is pleased to be able to offer funding for attendance of up to 3 consumer advocates from the MSRGN region. More information can be found on the Family Voices Press Release which can be accessed online at this link. If interested... Read More

Emergency Preparedness: Keeping Children Safe

September 21, 2017 — All of our families, both in and out of our region, remain in our thoughts in the days following both Hurricane Harvey and Hurricane Irma. The Federal Emergency Management Agency (FEMA) created Fact Sheets following Hurricane Harvey. While both have passed, it is important to be aware of hazards following natural disaster. Fact sheet are... Read More

A New Website- Come and Take a Look Around

July 27, 2017 — Welcome to the new MSRGN website! With a new grant cycle comes not only a new name but a new mission and a new website as well! We hope you are as excited as we are to embark on this new journey together. Take a Little Tour We would like to give you a highlight... Read More