November 3, 2021 —
MSRGN is inviting you to our Time 4 Genetics Webinar: What to do when you suspect Ehlers-Danlos Syndrome: A Practical Guide January 6, 2022 (at 11am PT, noon pm MT, 1pm CT, and 2pm ET) featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital To... Read More
October 22, 2020 —
The Colorado Virtual Education Series held in conjunction with the Children’s Hospital of Colorado and the MSRGN Colorado State Team will be holding their next Genetic Tuesday on the topic of: Ehlers-Danlos Syndromes – more than just skin and joints Their next session will take place on November 10, 2020 at noon- 1pm MT. To... Read More
August 3, 2020 —
During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More
Prior to 6/1/24 this website was maintained by MSRGN through a cooperative agreement funded by HRSA. Funding for this project ended on 5/31/24. Website content will be available until 5/31/26, however no updates are being made. This website was last updated on 5/31/24.