News

Time 4 Genetics Webinar~ Ehlers-Danlos Syndrome: January 6

November 3, 2021 — MSRGN is inviting you to our  Time 4 Genetics Webinar: What to do when you suspect Ehlers-Danlos Syndrome: A Practical Guide January 6, 2022 (at 11am PT, noon pm MT, 1pm CT, and 2pm ET)  featuring Guest Presenters: Dr. Abdallah (Abe) Elias Clinical Geneticist, Medical Director of the Department of Medical Genetics at Shodair Children’s Hospital To... Read More

Colorado Virtual Education Series November 10: Genetics Virtual Education Series: Ehlers-Danlos Syndromes – more than just skin and joints

October 22, 2020 — The Colorado Virtual Education Series held in conjunction with the Children’s Hospital of Colorado and the MSRGN Colorado State Team will be holding their next Genetic Tuesday on the topic of: Ehlers-Danlos Syndromes – more than just skin and joints Their next session will take place on November 10, 2020 at noon- 1pm MT. To... Read More

MSRGN Launches Ehlers Danlos Syndrome (EDS) Algorithm For Primary Care

August 3, 2020 — During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More