News

MSRGN Newborn Screening Family Listening Sessions Final Report

May 9, 2024 — Background Information In August of 2023, HRSA reached out to Mountain States Regional Genetics Network (MSRGN) for assistance with a family outcome newborn screening project. Supplemental funding was provided to MSRGN and each Regional Genetics Network (7) to support engagement of family leaders, especially those from underserved populations. The goal was to provide meaningful input... Read More

Genetic Navigator Training 2.0

March 4, 2024 — In 2021, MSRGN implemented a Genetic Navigator (1.0) outreach initiative in all 8 of our states. Over the last 3 years this program has facilitate over 250 family connections in our region. We have now developed a new Genetic Navigator training specifically for inside the genetics clinic or an “in-reach” (vs. outreach) program and we... Read More

Positive Newborn Screen Family Outcomes Listening Session

February 8, 2024 — MSRGN will be holding 2 listening sessions in March for families in our 8-state region who have recieved a positive newborn screen (bloodspot testing). Are you a family who has received a positive newborn screening result that lives in one of the 8 states in the MSRGN Region? If you are and would like to... Read More

Genetic Pop-Ups in January and February

January 14, 2024 — Please join us for 2 Genetics Pop-Ups coming up in January 2024 and February 2024: Registration and a flyer can be found linked below: January 16, 2024: Colorado State Team Genetic Pop-Up: Register Here February 22, 2024:  (Rare Disease Day) Hope through support Register Here Genetics Pop-Up 2023-2024 Flyer: here  

MSRGN and NYMAC Launch 2 more Genetic Recipe Infographics: VUS and DeNovo

July 18, 2023 — Mountain States Regional Genetics Network (MSRGN) in collaboration with The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is pleased to share 2 new infographic resources that continue on the Genetic Recipe Infographics Series. The 2 new cake infographics include: De novo: this infographic presents an analogy that helps in the understanding of a de... Read More

Montana Genetics Conference ~ June 16-17th

May 19, 2023 — 2023 Montana Genetics Conference: Wide Open Spaces Friday, June 17, 2023 & Saturday, June 18, 2023 Provider agenda Family day agenda Register Here You are invited to attend Wide Open Spaces, a free symposium in Helena at the Great Northern on June 16/17. If you are interested in discussing local and regional care coordination at... Read More

April 24th Genetics Pop-Up: DNA Day

March 20, 2023 — Join us to learn more about genetics! Experience a safe arena to ask questions, learn about resources and connect with others who have explored genetics for their own loved ones. At this virtual event on April 24, 2023 MSRGN will be talking about DNA and Chromosomes! You won’t want to miss learning about these key concepts... Read More

MSRGN and NYMAC Launch Genetic Recipe Infographics

January 12, 2023 — Mountain States Regional Genetics Network (MSRGN) in collaboration with The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is pleased to share 2 new infographic resources: The Genetic Recipe– this infographic presents an analogy based infographic that helps in the understanding of genetic terms like DNA, gene, chromosome and genome as related to a recipe... Read More

February 21st Genetics Pop-Up: Rare Disease Day

December 31, 2022 — Join us to learn more about genetics! Experience a safe arena to ask questions, learn about resources and connect with others who have explored genetics for their own loved ones. At this virtual event on February 21, 2023 MSRGN will be talking about Rare Disease Day! You won’t want to miss learning about this valuable resource... Read More