News

MSRGN Launches Red Flags 4 Genetics Handout for Families and Providers

June 28, 2021 — The MSRGN’s Genetic Ambassador group designed a survey for families which was shared in January 2021 and collected responses until March of 2021. This survey asked families (whose child went on to get a genetic diagnosis) about the “red flags” or symptoms, warning signs, or details that concerned them as parents. The responses of 114... Read More

Texas Genetics Conference ~ July 10, 2021

June 22, 2021 — 2021 Texas Genetics Conference Saturday, July 10, 2021  LIVE / FREE / ONLINE CONFERENCE Program/Agenda Here Continuing Education Info Here Register Here With advances in Genetic testing, an understanding of genetic principles is becoming an increasingly important part of healthcare. Genetic testing is changing the way physicians are diagnosing certain diseases, but also raises important... Read More

Inaugural Time 4 Genetics Webinar~ Red Flags 4 Genetics: May 18th

April 21, 2021 — MSRGN is inviting you to our inaugural Time 4 Genetics Webinar: Red Flags 4 Genetics May 18, 2021 (at 10am PT, 11am MT, noon CT, and 1pm ET)  featuring Guest Presenters: Carrie Schmid, MD, FAAP a pediatrician and geneticist and Alexandra Grace, CPNP-PC a nurse practitioner, both from The Children’s Hospital of San Antonio Genetics Department.... Read More

National Broadband Resources and April Webinars

April 6, 2021 — The Federal Communications Commission (FCC) launched a new Emergency Broadband Benefit resource in April 2021.   The tool allows partners and consumers to view by state or territory the providers that will be participating in the Emergency Broadband Benefit program. Each listing includes the type of service offered, whether it’s “fixed” or “mobile”, and whether the provider... Read More

National Survey of Children’s Health & Data Resource Center

March 30, 2021 — HRSA(DSCSHN) would like to bring awareness to an existing data resource, which provides access to child- and family-level estimates from the National Survey of Children’s Health (NSCH). The Data Resource Center (DRC), which is a project of the Child and Adolescent Health Measurement Initiative (CAHMI) out of Johns Hopkins University, is funded by HRSA/MCHB under... Read More

Explainer Video Survey Launched: for Providers

January 25, 2021 — Survey Title: MSRGN Genetics Explainer Video Idea Survey Who Should Take This Survey: Geneticists, Genetic Providers, Genetic Counselors, Non-Genetic Specialists, Primary Care Physicians, Pediatricians, Nurses, Nurse Practitioners, Anyone who talks about genetic terminology with a family in our region. What is an Explainer Video:  an animated video that describes a genetic word or concept in easy-to-understand... Read More

Telehealth 101 Telehealth for Tribes: HRSA Archive

January 25, 2021 — This Telehealth 101 Virtual Workshop was hosted by the Health Resources and Services Administration (HRSA) Office of Regional Operations (ORO), in collaboration with the North Dakota Department of Health and Spirit Lake Tribe of North Dakota held November 18-19, 2020. The archive of the materials and recording of the presentations can be found linked below:... Read More

MSRGN’s Holiday Genetics Gift List 2020

December 17, 2020 — What a year 2020 has been! In an effort to spread some joy and cheer as we end the year, and maybe give you a little chuckle, please check out our GENETICS Themed gift guide for those special people in your life: DNA Artwork by ZuniArtist Children’s Book: I Love Genetics DNA Coffee Mug Fuzzy... Read More

Spanish en español Resources Page

October 7, 2020 — In honor of National Hispanic Heritage Month (September 15 – October 15), MSRGN has compiled a list of genetic resources from our region and our sister regional genetics networks in SPANISH (en español). Click here to access this Spanish en español Genetics resource page.

MSRGN Launches Ehlers Danlos Syndrome (EDS) Algorithm For Primary Care

August 3, 2020 — During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More