News

MSRGN Launches Ehlers Danlos Syndrome (EDS) Algorithm For Primary Care

August 3, 2020 — During the last year of our previous grant cycle (June 2017-May 2020), MSRGN gathered a working group of geneticists, primary care physicians, and consumers to create an Ehlers Danlos Syndrome (EDS) Algorithm for Primary Care Physicians and Pediatricians. We are excited to announce that the document was completed in May and recently approved. We would... Read More

July 2020 Project Directors’ Message

July 30, 2020 — Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the July... Read More

Nevada State Team develops Brochure celebrating #PublicHealthGenetics Week

May 22, 2020 — The National Coordinating Center for the Regional Genetics Network (NCC) is sponsoring the first-ever Public Health Genetics Week from May 26-29, 2020. The goal of Public Health Genetics Week is to both increase awareness about, and to celebrate the efforts of professionals in, public health genetics. As part of this awareness campaign, our Nevada State Team... Read More

COVID19 State Specific Resources for Families

April 30, 2020 — In collaboration with our state teams, MSRGN developed these state-specific emergency preparedness resource sheets for COVID-19 and families impacted by genetic conditions. Click below on the state name to access the sheet for the 8 states in our region: Arizona Colorado Montana Nevada New Mexico Texas Utah Wyoming Also, check out this page with additional... Read More

Telemedicine and Telehealth Resources for COVID 19

March 25, 2020 — With the current pandemic involving the coronavirus, COVID19 , many specialty and primary care providers are transitioning rapidly to utilizing telehealth modalities. We have gathered some of the resources that are available to help medical practices find the information and guidance they need to meet the ever-changing needs of their patients during this time. If... Read More

Guide to State Telehealth Laws

January 16, 2020 — “The Center for Connected Health Policy’s (CCHP) Fall 2019 release of the “State Telehealth Laws and Reimbursement Policies” report highlights the changes that have taken place in state telehealth policy. The report offers policymakers, health advocates, and other interested health care professionals a summary guide of telehealth-related policies, laws, and regulations for all 50 states... Read More

Texas DSHS Hosts Newborn Screening Grand Rounds: Spinal Muscular Atrophy (SMA)

November 7, 2019 — Texas DSHS Newborn Screening Grand Rounds  Gene Therapy: A Landmark in Spinal Muscular Atrophy Treatment Newborn Screening Grand Rounds is a lecture series at TX DSHS. There is no cost to participate and continuing education credit is available for some professions. Participate in Grand Rounds by webinar or in-person in Austin. Wednesday, November 13, 2019,... Read More

Nevada ECHO on Genetics now Available

October 4, 2019 — In June, our Nevada state team partnered with Nevada ECHO for their series on Genetics. The entire series YouTube Playlist archive can be found here. Two of the talks are highlighted here: Cancer as a Genetic Issue, Nathan Slotnick, MD, PhD, MA, MS- presented 6/12/19:  The archive of the presentation can be found here. Neonatal and... Read More

MSRGN Celebrates Newborn Screening Month

September 16, 2019 — September is Newborn Screening Month (NBS). In celebration of the life-saving screening done across our region and in the United States, we have a learning session at our upcoming 2019 Genetics Summit, dedicated to NBS. We invite you to join us in Albuquerque, New Mexico on September 23-25 to learn more about the advances in... Read More